Down Syndrome Victoria is partnering with the Royal Children’s Hospital to trial a new clinic for children with Trisomy 21 (Down syndrome) and their families. This clinic will be a first in Victoria and has been designed with input from pediatricians, families and people with Trisomy 21.
The clinic will be staffed by a pediatrician with a special interest in the management of Trisomy 21, and Down Syndrome Victoria’s Family Support Manager. The clinic aims to provide expert medical care and education for families. It will also support families to access allied health, peer support, and government supports, e.g. NDIS, Centrelink. As part of the project we will also trial a practical family healthcare tool, which will support clinicians across Victoria to provide expert level care for children with Trisomy 21.
In the pilot phase the clinic will be run once per month and will focus on supporting families with newborns, as well as older children with complex medical needs (generally those who are seeing multiple specialists at the Royal Children’s Hospital). We are hopeful that we will be able to expand this service to allow us to support more families in the future.
The clinic does not provide routine health checks and will refer to local health services and other services as needed. This service is also not designed to replace the care provided by your local pediatrician.
We would like to acknowledge the Royal Children’s Hospital Department of General Medicine, Australian Government Department of Social Services and Melbourne Disability Institute.