Advocacy & Information

Find out more about our advocacy work, the Down Syndrome Advisory Network, and our Position Statements here.
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Down Syndrome Advisory Network

The Down Syndrome Advisory Network (DSAN) is a group of people with Down syndrome chosen to work together to provide direct advice to the Down Syndrome Australia Board. 

DSAN makes sure that Down Syndrome Australia receives direct input from Australians with Down syndrome on issues that affect them. 

DSAN helps Down Syndrome Australia to: 

  • understand what is important to people with Down syndrome;
  • guide the Board in its governance and strategy; 
  • make sure the work of DSA reflects input from people with Down syndrome; 
  • be a credible representative voice for people with Down syndrome;
  • develop resources; and 
  • identify and develop people with Down syndrome as leaders. 
Members of the Down syndrome Advisory Network standing together
Find out more about DSAN members and their work

Toolkits

Down Syndrome Australia has developed the Community Inclusion Toolkit to support the inclusion of people with Down syndrome in the community, whether it be in education, the work force, health settings, playing sport or out in the community. Being inclusive is about finding, offering and supporting opportunities for people of all ages, abilities and backgrounds, to participate, to learn, to contribute, and to belong.

These resources have been developed from talking with people with Down syndrome and their families about the best approach to support inclusion in the community.

Toolkits
See all our Community Inclusion Toolkits

Community Inclusion Toolkits

Man in formal clothes with a coffee.
Employment
Children reading science books.
Education
Mother and daughter playing with a stethoscope.
Health
Girl running on a track.
Community & Sporting

World Down Syndrome Day

On this day, people all around the world celebrate the lives and achievements of people with Down syndrome. This day provides an opportunity to raise awareness about the rights and inclusion of people with Down syndrome around the world. 

You may like to see our stories from World Down Syndrome Day celebrations.

March 21st is World Down Syndrome Day, which has been officially recognised by the United Nations since 2012.

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See all our stories about Down syndrome

World Down Syndrome Congress

Down Syndrome International organises the World Down Syndrome Congress (WDSC), to be held every 2-3 years in a different location. In 2020 the WDSC will be held in Dubai, and 2022 will be held in Brisbane, Australia! 

This international conference brings together people with Down syndrome, family members, researchers and service providers to showcase the latest research and best practice as well as the lived experience of Down syndrome from around the world.

For more information on the WDSC that will be held in Brisbane in 2022, please visit the Congress website.

Lady giving a talk
Visit the World Down Syndrome Congress website

Position Statements

Leave No One Behind is Down Syndrome Australia’s advocacy platform. This document gives an overview of key issues that are important to people with Down syndrome and their families. It includes recommendations about what needs to change.

An Easy Read version is available here: Leave No One Behind – Easy Read

Down Syndrome Australia have a toolkit which you can use to help you get in touch with members of parliament to let them know what is important to you. The toolkit is available here: Leave No One Behind – Advocacy Resources 

Down Syndrome Australia is often asked about its position on popular and, sometimes, controversial issues. We have a number of position statements which tell everyone what we think about some of these issues.

You can find all of our position statements on Prenatal testing, Education, Employment and Migration here

A group of people talking.
Read our Position Statements here

Resource Hub

Down Syndrome Australia provides information about Down syndrome across a range of platforms. 

We aim to ensure that everyone can access up-to-date, evidence-based information on Down syndrome.  

You can find all of our resources and information about Down syndrome in the Resource Hub. Visit the Hub to find out more about Down syndrome, health, education, employment and much more.

A boy getting help from a women on the computer.
Visit our Resource Hub

Advocacy and Infomation

Down Syndrome Australia’s work

A map of Australia and the Down syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

This means working with the other Down syndrome associations around the country.

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People with Down syndrome are at the centre of all the work we do.

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Down Syndrome Australia (DSA) does a lot of advocacy work.

Advocacy is speaking out for people and helping them speak out for themselves.

An information brochure next to the Dwn Syndrome Australia logo

DSA produces lots of information for people with Down syndrome and their families.

A nurse stands in the corridor of a hospital

We also produce information for other people such as teachers, employers and people who work in health services.

Down Syndrome Advisory Network (DSAN)

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A young woman in a yellow shirt raises her hands

They help Down Syndrome Australia to understand what is important to Australians with Down syndrome.

The DSAN helps us to make good decisions and do work that will help people with Down syndrome.

The Down syndrome Advisory network group at a presentation

They make sure Down Syndrome Australia listens to people with Down syndrome and follows their advice.

A woman with Down syndrome gives a speech

DSAN members learn skills to be leaders and advocates. They speak out for people with Down syndrome.

Toolkits

An information brochure next to the Dwn Syndrome Australia logo

Down Syndrome Australia writes information to help people with Down syndrome to be included in the community

A group of young adults stand together

Being included is about taking part and belonging just like everyone else.

People with disabilities should be included in everything in the community such as schools, work, sport and healthcare.

A woman with Down syndrome gives a speech

We talked with people with Down syndrome and their families about how to make sure people with Down syndrome are included.

A woman with Down syndrome gives a speech

We talked with people with Down syndrome and their families about how to make sure people with Down syndrome are included.

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We wrote the information so it is useful for everyone in the community.

We put the information on different areas together so that it is easy to find and useful.

We call this an information toolkit.

A woman with Down syndrome gives a speech

Here are the information toolkits:

Employment

Education

Health

Community and sport

You can see the Toolkits in the links below.