{"id":3705,"date":"2025-10-22T14:20:14","date_gmt":"2025-10-22T03:20:14","guid":{"rendered":"https:\/\/www.downsyndrome.org.au\/national\/?page_id=3705"},"modified":"2025-11-19T12:32:04","modified_gmt":"2025-11-19T01:32:04","slug":"information-for-life-2025","status":"publish","type":"page","link":"https:\/\/www.downsyndrome.org.au\/national\/annual-report-2024-25\/information-for-life-2025\/","title":{"rendered":"Information for Life\u00a02025"},"content":{"rendered":"\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Helping the Down syndrome community access clear, reliable information, advice and support<\/strong><\/h2>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>The Information for Life Program helps people with Down syndrome, their families and the wider community find the information, advice and support they need. It brings together national resources on topics that matter, with local delivery through State and Territory organisations.&nbsp; Key topic areas include health, education, social connections, employment, rights, behaviour, NDIS and more.&nbsp;<\/p>\n\n\n\n<p>The program makes sure resources are reliable, up-to-date and practical. It also helps Down syndrome organisations across Australia provide consistent information<s> <\/s>.&nbsp;<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Who creates and uses the resources<\/strong>&nbsp;<\/h3>\n\n\n\n<p>The National Resources Group guides the program. It includes people with Down syndrome, families and experts from Down Syndrome associations in all states and territories. The group develops, reviews and creates new resources to make sure they are useful, relevant and informed by the latest research.&nbsp;&nbsp;<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Program goals<\/strong>&nbsp;<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Provide clear, practical information and advice for people with Down syndrome, families, professionals and the wider community.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Build capacity and collaboration across the Down syndrome community.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Support informed choices that improve daily life and quality of life.&nbsp;<\/li>\n<\/ul>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>How it works<\/strong>&nbsp;<\/h3>\n\n\n\n<p>Project Officers from across the states and territories share information via:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Phone, email and face-to-face support.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Workshops and community events.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Online platforms, social media groups and newsletters.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Webinars, videos, apps and printed resources.&nbsp;<\/li>\n<\/ul>\n\n\n\n<p>A <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">National Information Register<\/mark><\/strong> tracks all resources, updates and feedback. This makes it easy for people to find reliable information across Australia.&nbsp;<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>2024\u201325 Highlights<\/strong>&nbsp;<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-a99911dc74a67775e8a00151760ef3a3\">Delivered <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">1,198 phone support sessions<\/mark><\/strong> and responded to <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">5,556 emails<\/mark><\/strong>.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-8c1bf256cf3f0c1096ea52f6e6cc335e\">Held <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">242 face-to-face support sessions<\/mark><\/strong>.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-dc8fc9fafdbe3b5a5364d9344a799bcb\">Recorded <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">632,937 website page views<\/mark><\/strong> across six platforms.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-a8bdc3f935c01b5576cddcb25c455130\">Developed or updated <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">65 new resources<\/mark><\/strong>, including PDFs, videos, and web pages.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-55dff7336237b9bc399040bc18f87e35\">Ran <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">55 webinars and podcasts<\/mark><\/strong>, with <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">814 attendees<\/mark><\/strong>.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-2b757e1155b4f96bc90e4ded1c964839\">Conducted surveys to understand the needs of families and people with Down syndrome in areas such as <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">social connections, health, employment, communication and decision-making<\/mark><\/strong>.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-4ae1fb92e60673d20ab9acaaac37f752\">The <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">2025 Survey<\/mark><\/strong> was distributed nationally to families and carers (over 18 years) of people with Down syndrome and received <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">339 responses<\/mark><\/strong>, providing insight into their relationship with DSA\u2019s information and advice services.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-26466b96c5b3c53e9a426eba3ddd60e2\">The <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\"><a href=\"https:\/\/www.downsyndrome.org.au\/voice\/issue\/housing-and-living\/\" target=\"_blank\" rel=\"noreferrer noopener\">July issue of Voice<\/a><\/mark><\/strong> focused on housing, with <mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\"><strong>2,830 print copies distributed<\/strong>.<\/mark>\u00a0<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-eafc1960ca7a21e76acd5af9309e9bea\">A digital PDF was also shared with <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\"><a href=\"https:\/\/www.downsyndrome.org.au\/voice\/support-voice\/subscribe\/\" target=\"_blank\" rel=\"noreferrer noopener\">3,471 subscribers<\/a><\/mark><\/strong>, improving access and reducing distribution costs.\u00a0<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-1101b36c7e24ae66ae2757fedb73efb8\">The Digital Voice link was included in DSA\u2019s <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\"><a href=\"https:\/\/www.downsyndrome.org.au\/news-events\/newsletter-filter-by-s-t\/down-syndrome-australia-newsletters\/\" target=\"_blank\" rel=\"noreferrer noopener\">monthly newsletter<\/a><\/mark><\/strong>, reaching <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\"><a href=\"https:\/\/downsyndrome.powerappsportals.com\/subscribe-voicenewsletter\/\" target=\"_blank\" rel=\"noreferrer noopener\">6,751 subscribers<\/a><\/mark><\/strong>.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-gray-900-color has-text-color has-link-color wp-elements-627781397e00df4f9ac5dbf675dcc76e\">Hosted <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-blue-color\">10 National Resources Group meetings<\/mark><\/strong> to guide projects and include input from people with Down syndrome.&nbsp;<\/li>\n<\/ul>\n\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-thumbnail\"><img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/www.downsyndrome.org.au\/national\/wp-content\/uploads\/sites\/12\/2020\/03\/man-and-woman-using-laptop-400x400.jpg\" alt=\"Man and woman using a laptop\" class=\"wp-image-23\"\/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\"><a href=\"https:\/\/www.downsyndrome.org.au\/resources\/\" target=\"_blank\" rel=\"noreferrer noopener\">Visit our Resource Hub<\/a><\/h2>\n\n\n\n<p>You can find a wide range of information resources in&nbsp;our Resource Hub.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>This program is funded by the Federal Government under the Information, Linkages and Capacity Building (ILC) program.&nbsp;<\/p>\n<\/blockquote>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Helping the Down syndrome community access clear, reliable information, advice and support The Information for Life Program helps people with 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