President
Hayley Warren
Hayley has a sister who has Down syndrome. She understood from a young age the challenges faced by people with Down syndrome and their families, particularly in regional areas.
Vice President
Margot Elliffe
Margot has been a member of Down Syndrome NSW for 32 years. Margot is passionate about education, training and community for families and people living with Down syndrome.
Secretary
Chris Elenor
Chris has a son Tom, with Down syndrome and has been a member of part of the Association since its inception, 37 years ago. In the past, Chris has held the positions of President and Treasurer.
Treasurer
Nicholas Gotsis
Nick has an older sister with Down syndrome and a long-term history of volunteering with Down Syndrome NSW. He is an accountant and manages a chartered accountant’s business.
Board Member
Evelyn Scott (OAM)
Evelyn was the founding president of the ACT Down Syndrome Association and held various committee positions for other intellectual disability organisations, including Special Olympics
Board Member
Janey Concepcion
Janey is the mother to a 6 year-old with multiple disabilities including Down syndrome. She is completing her Bachelor’s degree in Inclusive Education and Disability Studies. Janey works as self-employed educator and as a student.
Board Member
Andrew Hinde
Andrew is the father of seven year old daughter with Down syndrome. He has previously served as a board member of the organisation.
Board Member
Rene Pennock
Rene is the father of a ten year old son with Down syndrome. With over 14 years-experience as CEO or Company Secretary for NFPs, Rene offers a complete range of corporate and governance skills.
Board Member
Paula Rix
Paula has been a member of Down Syndrome NSW since the birth of her son Tom in 1981. She most recently served on the steering committee of the successful pilot of the Up, Up & Away project.
Board Member
Sonya Volker
Sonja is the mother of a 4 ½ year old son with Down syndrome. Sonja has nearly 20 years-experience working for a financial institution in a wide variety of roles.
Board Member
Gemma Namey
Gemma is the mother of two girls. The eldest was born in 2014 and has Down syndrome. She is committed to human rights and the rights of people with disabilities.