Hayley has a sister who has Down syndrome. She understood from a young age the challenges faced by people with Down syndrome and their families, particularly in regional areas.
Margot has been a member of Down Syndrome NSW for 32 years. Margot is passionate about education, training and community for families and people living with Down syndrome.
Chris has a son Tom, with Down syndrome and has been a member of part of the Association since its inception, 37 years ago. In the past, Chris has held the positions of President and Treasurer.
Nick has an older sister with Down syndrome and a long-term history of volunteering with Down Syndrome NSW. He is an accountant and manages a chartered accountant’s business.
Evelyn Scott (OAM)
Evelyn was the founding president of the ACT Down Syndrome Association and held various committee positions for other intellectual disability organisations, including Special Olympics
Janey is the mother to a 6 year-old with multiple disabilities including Down syndrome. She is completing her Bachelor’s degree in Inclusive Education and Disability Studies. Janey works as self-employed educator and as a student.
Andrew is the father of seven year old daughter with Down syndrome. He has previously served as a board member of the organisation.
Rene is the father of a ten year old son with Down syndrome. With over 14 years-experience as CEO or Company Secretary for NFPs, Rene offers a complete range of corporate and governance skills.
Paula has been a member of Down Syndrome NSW since the birth of her son Tom in 1981. She most recently served on the steering committee of the successful pilot of the Up, Up & Away project.
Sonja is the mother of a 4 ½ year old son with Down syndrome. Sonja has nearly 20 years-experience working for a financial institution in a wide variety of roles.
Gemma is the mother of two girls. The eldest was born in 2014 and has Down syndrome. She is committed to human rights and the rights of people with disabilities.