We would like to take this opportunity to congratulate you on your pregnancy and wish you all the best for the coming weeks.
We have a Guide for Expectant Parents to provide balanced information about Down syndrome to expectant parents. This guide is compiled by parents and professionals to provide you and your family with supportive, accurate and up to date information and answer some of the questions that you may have. DSQ also has an expectant parent pack.
If you would like to speak to someone in person, our Early Years Support Services Officer would be happy to assist you. DSQ also has parent volunteers called Regional Representatives who we can refer you to, to link in with other parents in your region.
It is natural to have questions about how and why this has happened. One of the first things to understand is that parents do not cause Down syndrome. It is a variance of nature – no one is to blame.
Most importantly, your baby will need your love and care just like any other baby. It may be difficult to realise, but your baby will be more like other babies than unlike. Take care of yourself through the remainder of your pregnancy and take the first few months to get to know your baby and enjoy parenthood. When you feel ready, we are here to help and support you in any way we can.
We run a Facebook closed group which is open to Queensland parents or carers of children with Down syndrome. The Down Syndrome Queensland Support Group is specifically created to encourage peer support, information sharing and to empower families and to create positive expectations of our children and adults. Please feel free to share your fears and joys, highs and lows, current information and news.
During your pregnancy we can provide information on the following;
- Understanding of the possible medical conditions related to Down syndrome
- Deciding on hospitals – Is a Tertiary hospital better if living regionally
- What the sonographer would be looking out for during ultrasound appointments
- Advocacy support with your medical team