Resources - Health and Ageing

Down Syndrome Australia resources

Community Inclusion Toolkit – Health Resources

Ageing

Ageing – Easy Read – coming soon!

Mental wellness and healthy living​

An on-demand webinar now available from Down Syndrome NSW called "Promoting strengths and mental wellness in Adults with Down Syndrome: Lessons learned" from the Adult Down Syndrome Center, Chicago with Dennis McGuire.

CHAP - the Comprehensive Health Assessment Program

CHAP enhances collaboration between a person with intellectual disability, their support or carer, and their GP, by provided a detailed health history. It is designed to minimise the barriers to healthcare and was developed by the Queensland Centre for Intellectual and Developmental Disability by Professor Nick Lennox. The program is used around Australia by state governments and non-government organisations such as Endeavour Foundation, and is being trialled by other countries.

Find out more about CHAP.

Dental Care Guidance for Caregivers of Patients with Down Syndrome

Visit the Emergency Dentists blog for some helpful information on dental care specific to patients with Down syndrome.

The Down Syndrome NOW (Needs, Opinions, Wishes) Report

In 2004, researchers at the Telethon Institute for Child Health Research, led by Dr Helen Leonard, conducted an important population-based study on the health, needs and functioning of children and young people with Down syndrome.

A general report on the 2004 Down Syndrome Needs Opinions Wishes study Down Syndrome Needs Opinions Wishes Study Report, 2007 provides descriptions of medical conditions and functional abilities by age, as well as information on the family and utilisation of support services.

A summary booklet describing some of the studies emanating from these data, Understanding Down Syndrome: Capturing family experiences through research has also been collated.

Other helpful resources

Voice article – Resilience in hospital

Voice article – Social sensitivity

NSW Council for Intellectual Disability (NSWCID) – My Health Matters