Resources - New Parents and Early Years

Down Syndrome Australia resources

New Parent Resource

New Parent ResourceThe New Parent Resource is a booklet designed specifically for parents and families with a new baby who has been diagnosed with Down syndrome. This booklet will help you understand what Down syndrome is, and what it means in the real world. It is packed with stories from families around Australia and it has the latest information on everything from dealing with well-meaning people to finding support in your part of the country. You can download the resource on our New Parents page.

New Parents Guide (FAQ)

New Parent Guide coverThe New Parent Guide (FAQ) is an shorter version of the New Parent resource available above. It includes frequently asked questions to help parents get information they may need.  The Guide is available to download at New Parents Guide.

Early Years Guide

Early Years resource coverDown Syndrome Australia have developed an Early Years Guide to provide information for parents about early intervention, development and supports in the early years. There is information about the NDIS and accessing services through the Early Childhood Early Intervention approach.

Resources available in other languages

The New Parent FAQ Guide and Early Years resources have been translated into five languages – Cantonese, Mandarin, Hindi, Arabic and Vietnamese. The translated versions are available on our Translated resources page.

Down Syndrome State and Territory resources

Booklets for new dads and grandparents

Down Syndrome Queensland has developed booklets with information for new dads and grandparents. These booklets include stories from other fathers and grandparents of children with Down syndrome. You can read the booklets below:

Information for New Dads

Information for New Grandparents

Growth Charts

Down Syndrome Victoria have developed growth charts for boys and girls. The charts are available here.  

Resources from other organisations


Information is available on the NDIS website about the Early Childhood Early Intervention approach to help families understand how to get the right support for their child with Down syndrome. 

Down Syndrome Medical Interest Group UK 

The Down Syndrome Medical Interest Group UK have developed inserts for the UK Personal Child Health Record book. These inserts contain information about developmental milestones and growth charts for children with Down syndrome. The insert can be found here. 

Now I See

A not-for-profit book written and edited locally and launched on World Down Syndrome Day 2014, in which fifty parents from Australia and New Zealand tell their personal and poignant stories of how they came, not simply to accept, but to embrace and celebrate life with their child with Down syndrome. Visit the Now I See website to learn more or order your own copy.

See and learn programmes from Down Syndrome Education International

These programmes have been developed to improve developmental and educational outcomes for children with Down syndrome. The programmes cover Speech, Language and Reading, Numbers and Memory. You can find the programmes at the See and Learn website.