Taking on the world together!

Late last year, Hugo Taheny, Ethan Parry and Sam Le Feuvre competed at the Virtus World Athletics Championships.

They’ve spent years competing together and have built a strong friendship along the way. Sport is a big part of their lives, but so is backing each other, having a laugh and sharing the experience.

In the latest edition of Voice, Hugo, Ethan and Sam talk about competing on the world stage, supporting each other and what sport means to them.

Read the full story, in their own words, in the latest edition of Voice: buff.ly/K7g9wTd

#Downsyndrome #Voice #Virtusgames ... See MoreSee Less

Accessible Communications is one of our current projects.

We’re looking at how easy NDIS factsheets are to understand. For many people, they’re still hard to read and harder to use.

People with Down syndrome and intellectual disability are reviewing the factsheets and sharing their feedback. They talk about what makes sense, what’s confusing and what would help.

The NDIS is using the feedback to improve current and future information.

Ally, a member of the Expert Review Panel, shared this:

“I hope our lived experience helps make a difference so Easy Read documents are actually easy to read and not long and complicated. I really like having a glossary to help me understand words I don’t know.”

This project is about making information clearer, so people can understand it and use it.

Learn more about the project: buff.ly/VJJYvGU

#accessiblecommunication #NDIS #livedexperience #Downsyndrome ... See MoreSee Less

DSA is proud to have two people with Down syndrome on our Board.

Their lived experience helps guide our work. It helps make sure our decisions reflect what matters to our community.

We spoke with Board member Michael Cox, who joined the Board in 2025, about what being on the Board involves and why it’s important.

Michael, in his words:

“I’ve always wanted to create a better world and a better society. Now that I’m on the Board, I can contribute to making life better for people with disabilities, particularly Down syndrome.”

“I attend quarterly Board meetings and prepare by reading all the papers. Being prepared helps me contribute fully. I’m also part of the Nominations and Governance Committee.”

“It’s extremely important that Boards and Governments hear directly from people with lived experience. Decisions should be made with people with disabilities, not just for organisations.”

“I believe in working together. We’re stronger together.”

Michael’s experience shows why people with lived experience belong at the decision-making table.

#DSA #livedexperience #Downsyndrome #disabilityadvocacy ... See MoreSee Less