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In March 2017, Down Syndrome Australia conducted its first national survey. We wanted to hear from people with Down syndrome and their families about the issues that matter to them and what their experiences are with NDIS, education, health care, employment, and the community. We had an overwhelming response as more than 800 people completed the survey to share their views. This article is a snapshot of some of the feedback we received.
Dr Ellen Skladzien is the CEO of Down Syndrome Australia
“The information gathered through the survey has been incredibly valuable. We have already been able to use the data to support our advocacy in areas around prenatal information and inclusive education. The information was also key to the success of our funding applications for the development of new resources and toolkits for community organisations.”

Bonus content
Get an update on DSA’s advocacy work on the NDIS including a recent survey of our members.
Down Syndrome Australia is always keen to hear your feedback, ideas and suggestions.
Comment below or send us an email at info@downsyndrome.org.au
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