We work to support all people with Down syndrome to achieve their full potential in all life stages.
We champion the rights of people with Down syndrome to be valued and to take their rightful place in the community.
The Down Syndrome Association of NSW was established in 1980 by parents of young people with Down syndrome. As the children of the founding members grew to adolescence and adulthood, our services extended to all life stages.
We are an enthusiastic team of professionals with expertise in our relevant fields of service provision. Some of us have lived experience with a family member with Down syndrome. We are here to support you – all working together to help our members with Down syndrome achieve their full potential.
Down Syndrome NSW currently only accepts membership via phone 9841 4444 or email. Once we receive your request, it will be presented to the board for approval. Membership is free and you can find out more here
MEDIA RELEASE 26/1/21:
Perry Gilsenan – 2021 Medal of the Order of Australia (OAM) for his unwavering support and dedication to the Down Syndrome community.
We are very proud and excited to hear that Perry Gilsenan has been awarded a Medal of the Order of Australia (OAM) for his unwavering support and dedication to the Down Syndrome community.
Perry’s inspiration is his daughter Grace who has Down syndrome. He established the annual Scrapheap Adventure Ride fundraising event which raised an amazing $115,131 in 2019 – a record breaking tally lifting the 10 year contribution to over $800,000. The ride had to be postponed last year due to Covid-19 but it is hoped it will be able to proceed in October this year.
The ride draws in a diverse range of community participants from far and wide across the eastern states and involves motorcycle enthusiasts purchasing a bike for no more than $1000 and doing it up for an adventure ride through the Aussie outback. While tinkering away on their bikes they work with their family and community to raise awareness and funds to support people with Down syndrome to fully participate in our society. With Perry’s unswerving passion and dedication the host communities for the ride destination embrace the event and band together with the riders and their supporters to form a passionate and caring network for each other and people with Down syndrome while raising much needed funds.
Perry is an absolute inspiration to all those that have the opportunity to know him. Thank you and congratulations.
Get In Touch
Street address: Level 6/410 Church St North Parramatta NSW 2151
Postal address: PO Box 3173 North Parramatta NSW 1750
Office Hours: Monday – Thursday 9:00am – 4:00pm
Reg Charity No. CFN11321
ABN 39 023 586 389