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(02) 9841 4444

• Information and support • Social connections • Advocacy

Overview

We work to support all people with Down syndrome to achieve their full potential in all life stages. 
We champion the rights of people with Down syndrome to be valued and to take their rightful place in the community.

About Us

The Down Syndrome Association of NSW was established in 1980 by parents of young people with Down syndrome. As the children of the founding members grew to adolescence and adulthood, our services extended to all life stages.

We are an enthusiastic team of professionals with expertise in our relevant fields of service provision.  Some of us have lived experience with a family member with Down syndrome.  We are here to support you – all working together to help our members with Down syndrome achieve their full potential.

Down Syndrome NSW currently only accepts membership via phone 9841 4444 or email. Once we receive your request, it will be presented to the board for approval. Membership is free and you can find out more here

MEDIA RELEASE 26/1/21:

Perry Gilsenan – 2021 Medal of the Order of Australia (OAM) for his unwavering support and dedication to the Down Syndrome community.

We are very proud and excited to hear that Perry Gilsenan has been awarded a Medal of the Order of Australia (OAM) for his unwavering support and dedication to the Down Syndrome community.

Perry’s inspiration is his daughter Grace who has Down syndrome. He established the annual Scrapheap Adventure Ride fundraising event which raised an amazing $115,131 in 2019 – a record breaking tally lifting the 10 year contribution to over $800,000. The ride had to be postponed last year due to Covid-19 but it is hoped it will be able to proceed in October this year.

The ride draws in a diverse range of community participants from far and wide across the eastern states and involves motorcycle enthusiasts purchasing a bike for no more than $1000 and doing it up for an adventure ride through the Aussie outback. While tinkering away on their bikes they work with their family and community to raise awareness and funds to support people with Down syndrome to fully participate in our society. With Perry’s unswerving passion and dedication the host communities for the ride destination embrace the event and band together with the riders and their supporters to form a passionate and caring network for each other and people with Down syndrome while raising much needed funds.

Perry is an absolute inspiration to all those that have the opportunity to know him. Thank you and congratulations.

For more information re the 2021 Scrapheap Adventure Ride, please go to www.scrapheapadventureride.com.au. For further information on Down Syndrome NSW you can visit www.downsyndromensw.org.au

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We are very proud to announce that Perry Gilsenan has been awarded a Medal of the Order of Australia (OAM) for his service to people with Down syndrome. 

Perry established the annual Scrapheap Adventure Ride fundraising event which has raised an amazing $800,000 in just 10 years for Down Syndrome NSW. Perry’s inspiration is his daughter Grace who has Down syndrome.

Congratulations Perry! What an incredibly well deserved recognition – we are so pleased to see you acknowledged.

We are very proud to announce that Perry Gilsenan has been awarded a Medal of the Order of Australia (OAM) for his service to people with Down syndrome. Perry established the annual Scrapheap Adventure Ride fundraising event which has raised an amazing $800,000 in just 10 years for Down Syndrome NSW. Perry’s inspiration is his daughter Grace who has Down syndrome.Congratulations Perry! What an incredibly well deserved recognition – we are so pleased to see you acknowledged. ... See MoreSee Less

1 day ago

Comment on Facebook We are very proud to...

Congrats 🥳 and thanks for all you do for the DS community 👏✅

Congratulations Perry. Thank you for your passionate leadership in support of people with Down syndrome and their families.

Congratulations Perry. Well done and well deserved for all your fundraising work for our Association. Best wishes to you and your family.

Congratulations Perry! Fantastic to see your passion and hard work acknowledged.

Congratulations

Congratulations

👏🏽👏🏽👏🏽

Congratulations!!! Amazing effort

Awesome

Yay...well done

Congratulations 🎉

Congratulations Perry!

Congrats!

Could not think of a more deserving man to receive this. Congratulations Perry.

Congrats Perry! Well deserved!

Congratulations. Well deserved

Big Congratulations and Thank You! Bravo!

Well done to you!!!

Congratulations 🥳

🍾

👏🏻👏🏻👏🏻🍾💙

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This years Flickerfest is screening the world premiere of the Australian short film Sparkles 🤩🎬

If youre in Sydney you can head along to view this wonderful film at Bondi Beach on Saturday the 23rd of January.

Tina Fielding from WA plays Cody Greenwood, a 30-something-year-old-woman with Down syndrome who wants to leave her past behind. So she runs away from a small country town to the big city. Along the way she becomes friends with a drag queen from the outback, and teaches us a valuable lesson to celebrate who we are. 

More info and tickets can be found here: https://flickerfest.com.au/

This year's Flickerfest is screening the world premiere of the Australian short film Sparkles 🤩🎬If you're in Sydney you can head along to view this wonderful film at Bondi Beach on Saturday the 23rd of January.Tina Fielding from WA plays Cody Greenwood, a 30-something-year-old-woman with Down syndrome who wants to leave her past behind. So she runs away from a small country town to the big city. Along the way she becomes friends with a drag queen from the outback, and teaches us a valuable lesson to celebrate who we are. More info and tickets can be found here: ... See MoreSee Less

5 days ago

... See MoreSee Less

1 week ago

Comment on Facebook A huge ...

Awesome! Congratulations 👏👏👏

Congratulations Julia 👏🏻 🥳🥳

Congratulations 🥰

A huge congratulations to member Kylie Scott whose advocacy work for people with an intellectual disability was recognised in December with a national medal.

Kylie was recognised for her nomination for “Individual Best Achievement for Service to the Australian People” at the annual Aspire awards. The Aspire Awards began in 2016 and recognise and celebrate the important contributions of people who identify with a disability.

A huge congratulations to member Kylie Scott whose advocacy work for people with an intellectual disability was recognised in December with a national medal.Kylie was recognised for her nomination for “Individual Best Achievement for Service to the Australian People” at the annual Aspire awards. The Aspire Awards began in 2016 and recognise and celebrate the important contributions of people who identify with a disability. ... See MoreSee Less

2 weeks ago

Comment on Facebook 162973473715851_3989579171055243

Congratulations!

Congratulations Kylie! 🤩

Congratulations on this recognition

Congratulations Kylie. Great work

Great achievement congratulations 👍💕👏👏

Congratulations! That’s awesome!!

Well done Kylie. That is great recognition of your work

This is wonderful recognition Kylie! Congratulations 👏👏👏

Congratulations Kylie ⭐️

Congratulations Kylie

Congratulations Kylie

Congratulation Kylie.

Well done Kylie

Congratulations 🎉

🌹👍🌹👍🌹👍👍👍

Congratulations!

Congratulations

Congratulations.

Congratulations

👏👏👏👏👏

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Get In Touch

Street address: Level 6/410 Church St North Parramatta NSW 2151
Postal address: PO Box 3173 North Parramatta NSW 1750
Office Hours: Monday – Thursday 9:00am – 4:00pm

Phone: (02) 9841 4444
Toll free: 1800 811 629
Email: admin@dsansw.org.au

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Reg Charity No. CFN11321
ABN 39 023 586 389  

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