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(02) 9841 4444

• Information and support • Social connections • Advocacy

Our Why

We work to support all people with Down syndrome to achieve their full potential in all life stages. 
We champion the rights of people with Down syndrome to be valued and to take their rightful place in the community.

Our Strategic Plan 2021-23

View the Strategic Planhttps://www.downsyndrome.org.au/wp-content/uploads/2021/03/DSNSW_StategicPlan-f-17-3-21.pdf

Your Support

The work we do is not possible without your generous support. If you wish to support the work we do and make a donation, you can do so online or please phone us on 02 9841 4444.

Our Impact

The Down Syndrome Association of NSW was established in 1980 by parents of young people with Down syndrome. As the children of the founding members grew to adolescence and adulthood, so too our services extended to all life stages. We now provide information and support, advocacy, capacity building workshops, training in schools, community participation programs, pre-natal expert advice, new parent resources and support and specialist employment preparation and connection.

We are an enthusiastic team of professionals with expertise in our relevant fields of service provision, support and advocacy.  Some of us have lived experience with a family member with Down syndrome, some bring a range of expertise and industry experience.  We are here to support you – all working together to help our members with Down syndrome achieve their full potential.

Down Syndrome NSW accepts membership via phone 9841 4444 or email. Once we receive your request, it will be presented to our Board for approval, in line with our Constitution. Membership is free and you can find out more here

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EOI: PARENT PRESENTER PANELFollowing the success of our housing workshop this year, we are thrilled to announce our first face to face conference, as part of our annual conference series. We will also be bringing back our highly successful Education Conference and our Health and Ageing Conference, as well as an annual Research and Policy Forum. Watch this space - more to follow on these soon!"THERE’S NO PLACE LIKE HOME"Home means different things to different people. This year's theme, "There's No Place Like Home", speaks to the individuality of our home preferences and the journeys we are on. Never linear, the twists and turns make this journey as challenging as it is rewarding with many lessons along the way. Our theme also speaks to the meaning of "home" and how the definition of this draws very much on person centred approaches, as defined and more importantly, felt by the individual.Our Annual Down Syndrome NSW Housing and Accommodation Conference 2022 will be held at the Wesley Conference Centre, 220 Pitt Street, Sydney on Monday 22 August to Tuesday 23 August 2022. Full program and registrations will be released soon, along with discounted accommodation with our partners at the Castlereagh Boutique Hotel.EOI: PARENT PRESENTER PANELWe are seeking expressions of interest from parents, families, advocates and people with Down syndrome on various stages of their housing and accommodation journey who wish to share their experience and learnings as part of our parent panels on day one.You might have great tips to share on preparing teens and young adults at home with practical tools and initiatives, or you might have moved out of home and are experiencing a new environment. You may have tried some approaches, are planning or have changed your housing along the way. We believe everyone has a great story to tell. Presenters will have 10 minutes to share their journeys, the pros and cons, the outcomes and take questions from the audience. We warmly welcome and encourage presenters from metro, regional and rural settings to contribute.We will be looking at the journey across different stages, including:Getting into the Move Groove: Preparing to move by starting at home, practical tips and strategies to start early;Moving On Up: Getting your plan, researching options, process of searching for your home, which type of housing you're looking at, meeting with providers, sharing questions to ask, things to look for, tools to use;Moving On Out: The different home types chosen, preparing for the big move, tips, the big day, adjusting to a new home (and parents adjusting too), range of stories from new home movers and medium to long term established home residents;Moving Around: We tried, we learnt. We don't always get it right the first time, some may be back at home. Lessons learned and next steps to explore.Learn more at our Presenter Information Pack:https://downsyndrome.org.au/nsw/wp-content/…Fill in the EOI Form here:https://surveymonkey.com/r/…Full program and registration will be released soon. ... See MoreSee Less

4 days ago
EOI: PARENT PRESENTER PANEL
Following the success of our housing workshop this year, we are thrilled to announce our first face to face conference, as part of our annual conference series. We will also be bringing back our highly successful Education Conference and our Health and Ageing Conference, as well as an annual Research and Policy Forum. Watch this space - more to follow on these soon!

THERE’S NO PLACE LIKE HOME
Home means different things to different people. 

This years theme, Theres No Place Like Home, speaks to the individuality of our home preferences and the journeys we are on. Never linear, the twists and turns make this journey as challenging as it is rewarding with many lessons along the way. Our theme also speaks to the meaning of home and how the definition of this draws very much on person centred approaches, as defined and more importantly, felt by the individual.

Our Annual Down Syndrome NSW Housing and Accommodation Conference 2022 will be held at the Wesley Conference Centre, 220 Pitt Street, Sydney on Monday 22 August to Tuesday 23 August 2022. 

Full program and registrations will be released soon, along with discounted accommodation with our partners at the Castlereagh Boutique Hotel.

EOI: PARENT PRESENTER PANEL
We are seeking expressions of interest from parents, families, advocates and people with Down syndrome on various stages of their housing and accommodation journey who wish to share their experience and learnings as part of our parent panels on day one.

You might have great tips to share on preparing teens and young adults at home with practical tools and initiatives, or you might have moved out of home and are experiencing a new environment. You may have tried some approaches, are planning or have changed your housing along the way. We believe everyone has a great story to tell. 

Presenters will have 10 minutes to share their journeys, the pros and cons, the outcomes and take questions from the audience. We warmly welcome and encourage presenters from metro, regional and rural settings to contribute.

We will be looking at the journey across different stages, including:

Getting into the Move Groove: 
Preparing to move by starting at home, practical tips and strategies to start early;

Moving On Up: 
Getting your plan, researching options, process of searching for your home, which type of housing youre looking at, meeting with providers, sharing questions to ask, things to look for, tools to use;

Moving On Out: 
The different home types chosen, preparing for the big move, tips, the big day, adjusting to a new home (and parents adjusting too), range of stories from new home movers and medium to long term established home residents;

Moving Around: 
We tried, we learnt. We dont always get it right the first time, some may be back at home. Lessons learned and next steps to explore.

Learn more at our Presenter Information Pack:
https://www.downsyndrome.org.au/nsw/wp-content/uploads/sites/2/2022/06/Parent-Panel-Presentation-Info-1.docx

Fill in the EOI Form here:
https://www.surveymonkey.com/r/DSNSW_Housing_Conference_Presenters_EOI

Full program and registration will be released soon.

Timeline photosAs part of our commitment to improving how NDIS participants take part in social and community activities, we have conducted research to further understand participants' experiences and to identify what supports work best.The results of this research will inform our approach to supporting social and community participation for NDIS participants. We will develop resources for participants and their families and carers that will help them think about social and community participation and the types of support available. Tap to learn more: ... See MoreSee Less

6 days ago

Weekend cooking inspo from Chef Camille Madeleine J Collins, devilled chicken, yum! ... See MoreSee Less

6 days ago
Weekend cooking inspo from Chef Camille Madeleine J Collins, devilled chicken, yum!

Comment on Facebook

Talented young lady.

Yumm, do you do take away Camille??

🌶🌶🌶

Sweetheart

Go Camille Madeleine J Collins!

View more comments

Saturday cuteness 💗 ... See MoreSee Less

6 days ago
Saturday cuteness 💗

Comment on Facebook

Melting hearts with that smile 💕

Cutie pie , live your suit and those great shoes ,

Sweetheart so cute and adorable ❤️

She is beautiful 💜

What a little cutie 💞💞💞

Beautiful 💕

Cuteness overload ❤️

Cuteness overload 💕💕💕💕💕

Hello happy girl.

Looks so happy

Un angel en la tierra!

so adorable

View more comments

Get In Touch

Postal address: PO Box 3173 North Parramatta NSW 1750
Office Hours: Monday – Thursday 9:00am – 4:00pm

Phone: (02) 9841 4444
Toll free: 1800 811 629
Email: admin@dsansw.org.au

Feedback and Complaints

Reg Charity No. CFN11321
ABN 39 023 586 389  

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