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(02) 9841 4444

• Information and support • Social connections • Advocacy

Our Why

We work to support all people with Down syndrome to achieve their full potential in all life stages. 
We champion the rights of people with Down syndrome to be valued and to take their rightful place in the community.

Our Strategic Plan 2021-23

View the Strategic Plan

Your Support

The work we do is not possible without your generous support. If you wish to support the work we do and make a donation, you can do so online or please phone us on 02 9841 4444.

Our Impact

The Down Syndrome Association of NSW was established in 1980 by parents of young people with Down syndrome. As the children of the founding members grew to adolescence and adulthood, so too our services extended to all life stages. We now provide information and support, advocacy, capacity building workshops, training in schools, community participation programs, pre-natal expert advice, new parent resources and support and specialist employment preparation and connection.

We are an enthusiastic team of professionals with expertise in our relevant fields of service provision, support and advocacy.  Some of us have lived experience with a family member with Down syndrome, some bring a range of expertise and industry experience.  We are here to support you – all working together to help our members with Down syndrome achieve their full potential.

Down Syndrome NSW accepts membership via phone 9841 4444 or email. Once we receive your request, it will be presented to our Board for approval, in line with our Constitution. Membership is free and you can find out more here

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5 days ago
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Join us next month for a nurturing and beautiful experience.

We have interactive sensory play, expert tips on early intervention and the NDIS and of course, wonderful connections.Open to all parents, grandparents, aunts, uncles and siblings of bubs with Down syndrome aged 0-2. Light refreshments provided and lots of love.Learn more and register here: ... See MoreSee Less

5 days ago
Join us next month for a nurturing and beautiful experience.

We have interactive sensory play, expert tips on early intervention and the NDIS and of course, wonderful connections.

Open to all parents, grandparents, aunts, uncles and siblings of bubs with Down syndrome aged 0-2. Light refreshments provided and lots of love.

Learn more and register here:
https://events.humanitix.com/new-babies-day

🤍Looking for information on dry skin, folliculitis, hidradenitis suppurative, and other skin conditions in people with Down syndrome? The Down Syndrome Center of Western PA has two very informative podcast episodes on skin conditions in people with Down syndrome. The podcast is hosted by Kishore Vellody, MD, the medical director of the Down syndrome Center of Western Pennsylvania. The episodes feature Jillian Rork, MD, a dermatologist at Dartmouth-Hitchcok Medical Center who is an expert on skin conditions in people with Down syndrome. The episodes are available here: https://adscresources.advocatehealth.com/skin-cond…; ... See MoreSee Less

5 days ago
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ONLINE WORKSHOP: Supporting Your Child with Down Syndrome During their Transition to Primary School

Hannah Edwards and Alison Maunder will explore the many ways that you can support your child with Down syndrome as they transition to school. Hannah will focus on how to prepare your child from a sensory, social and regulation perspective, with activity ideas for both before and after the school day. Alison will provide practical ideas and suggestions for how to prepare your child for the structure and routines of the school day, as well as advice for effective communication with school staff, particularly your child’s classroom teacher and support staff. She will provide suggestions for developing positive home-school connections, while keeping the unique needs of the individual child at its core. Hannah and Alison will also explore the many ways that you can advocate for your child within this new educational setting, and help you to identity key information that all of those that are working with your child should be aware of. Date: Tuesday 24th October 2023 Time: 7:00pm-8:30pm Format: Online via Zoom Registration: FREE for Down Syndrome NSW Members Register here:https://events.humanitix.com/dsnsw-supporting-your… ... See MoreSee Less

6 days ago
ONLINE WORKSHOP: Supporting Your Child with Down Syndrome During their Transition to Primary School 

Hannah Edwards and Alison Maunder will explore the many ways that you can support your child with Down syndrome as they transition to school. 

Hannah will focus on how to prepare your child from a sensory, social and regulation perspective, with activity ideas for both before and after the school day.  

Alison will provide practical ideas and suggestions for how to prepare your child for the structure and routines of the school day, as well as advice for effective communication with school staff, particularly your child’s classroom teacher and support staff. She will provide suggestions for developing positive home-school connections, while keeping the unique needs of the individual child at its core.  

Hannah and Alison will also explore the many ways that you can advocate for your child within this new educational setting, and help you to identity key information that all of those that are working with your child should be aware of. 

Date: Tuesday 24th October 2023 
Time: 7:00pm-8:30pm 
Format: Online via Zoom 
Registration: FREE for Down Syndrome NSW Members 

Register here:
https://events.humanitix.com/dsnsw-supporting-your-child-with-down-syndrome-during-their-transition-to-school

Get In Touch

Postal address: PO Box 3173 North Parramatta NSW 1750
Office Hours: Monday – Thursday 9:00am – 4:00pm

Phone: (02) 9841 4444
Toll free: 1800 811 629
Email: admin@dsansw.org.au

Feedback and Complaints

Reg Charity No. CFN11321
ABN 39 023 586 389  

Send an enquiry

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