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(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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Applications are open to join DSV's Advisory Network

DSV is looking for 2 people with Down syndrome to join our Advisory Network. The Advisory Network helps DSV understand what is important to people with Down syndrome. You will help DSV make good decisions.

Find out more

Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community


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Our work and strategic plan

Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

Man and young girl sitting in nature.

Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

A woman in a red dress holds a sign saying support

We help people with Down syndrome and families with support, information and resources.

Couple with a baby

We have support services for people with Down syndrome and families, at all stages of life.

Our Services

A young woman with a support team

Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

A man talks, next to a woman.

We also advocate for people with Down syndrome and their families.

A man holding thumbs up

This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

A document with the word 'Policy'

You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

Facebook

Twitter

Instagram

LinkedIn

YouTube

Pinterest

Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

Get Social

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It is important that we have health checks as we get older. If you would like to learn more about what cervical screenings are (also known as pap smears), when we need to get them and what is involved, there are resources that explain it all in easy to read language.

Down Syndrome Victoria were lucky enough to be the recipient of a Cancer Council grant to run workshops for our community about the importance of cancer screenings as we age, and to share information about what's involved. Down Syndrome Australia also worked with @Cancer Council Victoria to develop resources that are easy to read about health checks and cancer screenings. You can find these resources on the Down Syndrome Australia website at https://downsyndrome.org.au/resources/health/…We hope that the resources make the screening processes feel less scary and that you feel ready to get your health checked when you need to. We invite you to read and share the resources. Thank you to the Cancer Council for your support and training so that we can help keep our community informed and healthy. ID: The graphic includes a picture of a doctor smiling at a patient. ... See MoreSee Less

5 days ago
It is important that we have health checks as we get older. If you would like to learn more about what cervical screenings are (also known as pap smears), when we need to get them and what is involved, there are resources that explain it all in easy to read language. 

Down Syndrome Victoria were lucky enough to be the recipient of a Cancer Council grant to run workshops for our community about the importance of cancer screenings as we age, and to share information about whats involved. 

Down Syndrome Australia also worked with @Cancer Council Victoria  to develop resources that are easy to read about health checks and cancer screenings. You can find these resources on the Down Syndrome Australia website at https://www.downsyndrome.org.au/resources/health/cancer-screening/

We hope that the resources make the screening processes feel less scary and that you feel ready to get your health checked when you need to. We invite you to read and share the resources. 

Thank you to the Cancer Council for your support and training so that we can help keep our community informed and healthy. 

ID: The graphic includes a picture of a doctor smiling at a patient.

Did you know that Club21 isn’t just in-person? We also have an amazing online program on Zoom where you can connect, have fun and try new activities—all from the comfort of home!

🎤 Sing your heart out in karaoke🧠 Test your knowledge in trivia🎉 Win big in bingo🗣️ Enjoy relaxed afternoon chats💃 Move and groove in Zumba, yoga and a weekly discoEach session lasts one hour and activities run during the week and on Saturday nights. Check out our schedule and join the fun! For more information email us at Club21@dsav.asn.au or fill in https://downsyndromevictoria.snapforms.com.au/form…ID: The words "Club21 Online: enjoy Club21 from the comfort of your own home" and a picture of a computer screen with an image of two people dancing on the screen. ... See MoreSee Less

6 days ago
Did you know that Club21 isn’t just in-person? We also have an amazing online program on Zoom where you can connect, have fun and try new activities—all from the comfort of home! 

🎤  Sing your heart out in karaoke
🧠  Test your knowledge in trivia
🎉  Win big in bingo
🗣️  Enjoy relaxed afternoon chats
💃  Move and groove in Zumba, yoga and a weekly disco

Each session lasts one hour and activities run during the week and on Saturday nights. Check out our schedule and join the fun! 

For more information email us at Club21@dsav.asn.au or fill in https://downsyndromevictoria.snapforms.com.au/form/club21-enquiry-forms

ID: The words Club21 Online: enjoy Club21 from the comfort of your own home and a picture of a computer screen with an image of two people dancing on the screen.

We have so many workshops and events coming up! Maybe there’s something that you would like to join us for. Have a look at our events page for more details and to register: https://downsyndrome.org.au/vic/news-and-events/…

💙 Your vote counts: understanding how to vote, Tuesday 22 April at 7pm on Zoom. A timely and important workshop with the upcoming federal election. 💙 A cheeky chat about bowel screening for adults with Down syndrome, Wednesday 23 April at 7:30pm on Zoom. An info session to help make this health check a bit less scary. 💙 Coffee and Chat 15+ years, Thursday 24 April at 8pm on Zoom. An opportunity to chat with other parents and carers. 💙 Transition to primary school, Tuesday 29 April at 10am on Zoom. A session to inform parents about choosing a primary school for their child with Down syndrome. 💙 Ballarat dinner and Q&A with DSV, Friday 2 May at 6:30pm in person in Alfredton. An opportunity for people in and around Ballarat to come together, learn about DSV and discover more about our community. 💙 Transition to secondary school, Tuesday 6 May at 7pm on Zoom. A session to inform parents about choosing a secondary school for their child with Down syndrome. And believe it or not, there are even more workshops listed on our events page. We hope you will join us at these opportunities to learn and connect. ID: A group of four DSV staff and community members standing around a table in a room at Parliament House. They are talking and smiling. ... See MoreSee Less

6 days ago
We have so many workshops and events coming up! Maybe there’s something that you would like to join us for. Have a look at our events page for more details and to register: https://www.downsyndrome.org.au/vic/news-and-events/events/ 

💙 Your vote counts: understanding how to vote, Tuesday 22 April at 7pm on Zoom. A timely and important workshop with the upcoming federal election.  

💙 A cheeky chat about bowel screening for adults with Down syndrome, Wednesday 23 April at 7:30pm on Zoom. An info session to help make this health check a bit less scary. 

💙 Coffee and Chat 15+ years, Thursday 24 April at 8pm on Zoom. An opportunity to chat with other parents and carers. 

💙 Transition to primary school, Tuesday 29 April at 10am on Zoom. A session to inform parents about choosing a primary school for their child with Down syndrome.  

💙 Ballarat dinner and Q&A with DSV, Friday 2 May at 6:30pm in person in Alfredton. An opportunity for people in and around Ballarat to come together, learn about DSV and discover more about our community. 

💙 Transition to secondary school, Tuesday 6 May at 7pm on Zoom. A session to inform parents about choosing a secondary school for their child with Down syndrome.  

And believe it or not, there are even more workshops listed on our events page. We hope you will join us at these opportunities to learn and connect.  

ID:  A group of four DSV staff and community members standing around a table in a room at Parliament House. They are talking and smiling.

Want to work with Down Syndrome Victoria? We’re hiring!

DSV is looking for 2 people with Down syndrome to join our Advisory Network. The Advisory Network helps DSV understand what is important to people with Down syndrome. You will help DSV make good decisions.✅ Paid casual job✅ Share what matters to YOU✅ Be a leader in your community✅ Help us make great decisionsApply with a video or in writing – get creative and have fun!You must be 18 years or older to apply. If you have any questions or want to apply, contact Madison Robinson. Applications close on Friday 16 May.Email: advisorynetwork@dsav.asn.auFor full details, visit our website at the link in our bio.ID: The Advisory Network with Madison. They are all standing together in front of a DSV sign and smiling. ... See MoreSee Less

7 days ago
Want to work with Down Syndrome Victoria? We’re hiring! 

DSV is looking for 2 people with Down syndrome to join our Advisory Network. The Advisory Network helps DSV understand what is important to people with Down syndrome. You will help DSV make good decisions.

✅ Paid casual job
✅ Share what matters to YOU
✅ Be a leader in your community
✅ Help us make great decisions

Apply with a video or in writing – get creative and have fun!

You must be 18 years or older to apply. 

If you have any questions or want to apply, contact Madison Robinson. Applications close on Friday 16 May.

Email: advisorynetwork@dsav.asn.au

For full details, visit our website at the link in our bio.

ID: The Advisory Network with Madison. They are all standing together in front of a DSV sign and smiling.

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

Send an enquiry

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