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(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

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Our work and strategic plan

Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

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Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

A woman in a red dress holds a sign saying support

We help people with Down syndrome and families with support, information and resources.

Couple with a baby

We have support services for people with Down syndrome and families, at all stages of life.

Our Services

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Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

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We also advocate for people with Down syndrome and their families.

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This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

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You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

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Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

Get Social

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It was another fantastic day at the World Down Syndrome Congress in Brisbane today with a number of DSV staff presenting. This morning kicked off with a moving memorial for Sir Robert Martin, a disability rights activist and member of the United Nations Committee on the Rights of Persons with Disabilities. We also heard from Charlotte Woodward, a strong self-advocate from the National Down Syndrome Society in the U.S.

There were many other topics covered today from the neuroscience of Down syndrome, dance and creative arts, health and diet, the importance of siblings within family units and of course two of our very own Down Syndrome Victoria presentations: The Evolution of Down Syndrome Victoria's Education Support Service (with Ro O'Dwyer), and Fitskills - an innovative and evidence-based physical activity program for people with Down syndrome (with Matt O'Neil, Brad Cresswell and Dan Payne).There are more than 1000 delegates from over 45 countries sharing culture, learnings and forming connections at the World Down Syndrome Congress and we look forward to sharing more information, updates and resources both as the event progresses, and in the coming weeks. ... See MoreSee Less

24 hours ago
It was another fantastic day at the World Down Syndrome Congress in Brisbane today with a number of DSV staff presenting. This morning kicked off with a moving memorial for Sir Robert Martin, a disability rights activist and member of the United Nations Committee on the Rights of Persons with Disabilities. We also heard from Charlotte Woodward, a strong self-advocate from the National Down Syndrome Society in the U.S. 

There were many other topics covered today from the neuroscience of Down syndrome, dance and creative arts, health and diet, the importance of siblings within family units and of course two of our very own Down Syndrome Victoria presentations: The Evolution of Down Syndrome Victorias Education Support Service (with Ro ODwyer), and Fitskills - an innovative and evidence-based physical activity program for people with Down syndrome (with Matt ONeil, Brad Cresswell and Dan Payne).

There are more than 1000 delegates from over 45 countries sharing culture, learnings and forming connections at the World Down Syndrome Congress and we look forward to sharing more information, updates and resources both as the event progresses, and in the coming weeks.Image attachmentImage attachment+1Image attachment

1 CommentComment on Facebook

Congratulations Matt and team!!

It’s fabulous to have so many Victorian families and some of the DSV team representing our state at the World Down Syndrome Congress in Brisbane this week! ... See MoreSee Less

2 days ago
It’s fabulous to have so many Victorian families and some of the DSV team representing our state at the World Down Syndrome Congress in Brisbane this week!Image attachmentImage attachment+5Image attachment

Join us for an online information session about advocacy in education on Tuesday 23 July at 10am. This workshop will provide parents and carers with information about advocating for your child in the school system.

You will gain knowledge about:+ school systems and supports available for children with disabilities+ advocating for your child within the education system+ the importance of building a partnership with the school + pathways for complaints.The workshop will be presented by DSV's education managers Paula Kilgallon and Ro O'Dwyer.To find out more and register, visit https://downsyndrome.org.au/blog/event/…ID: Primary-aged children sitting around a desk eating lunch. ... See MoreSee Less

3 days ago
Join us for an online information session about advocacy in education on Tuesday 23 July at 10am. This workshop will provide parents and carers with information about advocating for your child in the school system.

You will gain knowledge about:

+ school systems and supports available for children with disabilities
+ advocating for your child within the education system
+ the importance of building a partnership with the school 
+ pathways for complaints.

The workshop will be presented by DSVs education managers Paula Kilgallon and Ro ODwyer.

To find out more and register, visit https://www.downsyndrome.org.au/blog/event/advocacy-in-education-2/

ID: Primary-aged children sitting around a desk eating lunch.

Down Syndrome Australia want to hear from people with Down syndrome!

Help DSA by doing a short survey. In this survey DSA ask questions about:+ finding information+ getting support.DSA want to know about:+ what works wells for you+ what does not work well+ any problems with getting the right support.Then DSA can provide the right support and information for people with Down syndrome.If you have questions, contact Down Syndrome Australia.Phone: 1300 344 954Email: info@downsyndrome.org.auThe survey is in Easy Read. It can take about 10 minutes. You can ask someone you know to support you.You can do the survey by visiting the website: ID: A young woman holds up a sign that says 'Survey' and in the background there is an example of a survey tickbox. ... See MoreSee Less

1 week ago
Down Syndrome Australia want to hear from people with Down syndrome!

Help DSA by doing a short survey. In this survey DSA ask questions about:
+ finding information
+ getting support.

DSA want to know about:
+ what works wells for you
+ what does not work well
+ any problems with getting the right support.

Then DSA can provide the right support and information for people with Down syndrome.

If you have questions, contact Down Syndrome Australia.
Phone: 1300 344 954
Email: info@downsyndrome.org.au

The survey is in Easy Read. It can take about 10 minutes. You can ask someone you know to support you.

You can do the survey by visiting the website: https://tinyurl.com/mrxc4wvv

ID: A young woman holds up a sign that says Survey and in the background there is an example of a survey tickbox.

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

Send an enquiry

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