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1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

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World Down Syndrome Congress 2024

Join us for this exciting event held in Brisbane, Australia!

Find out more or register

Overview

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

We are committed to achieving our vision through demonstrating our values of:

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Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

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Do you want to be part of making World Down Syndrome Congress 2024 come to life?

Volunteers are a critical part of Congress and we need someone to help us to recruit and organise our volunteers for this once in a lifetime event.This is a voluntary role between now and the Congress in July. Time commitment will start at a few hours a week, building up to a day or two a week as we get closer to Congress.Responsibilities will include:• helping in recruitment of volunteers• establishing an on-boarding / registration process for volunteers• co-ordinating the roles for volunteers• co-ordinating uniforms• induction and co-ordination at the Congress on 9-12 July.Ideally candidates will be based in south-east Queensland.Keen to help make WDSC 2024 a success and want to find out more? Please contact Liz Willis at liz.willis@downsyndrome.org.auIf you're interested in volunteering at Congress, stay tuned for volunteer opportunities closer to the time.Please share this opportunity with anyone who may be interested. ... See MoreSee Less

1 day ago
Do you want to be part of making World Down Syndrome Congress 2024 come to life?

Volunteers are a critical part of Congress and we need someone to help us to recruit and organise our volunteers for this once in a lifetime event.

This is a voluntary role between now and the Congress in July. Time commitment will start at a few hours a week, building up to a day or two a week as we get closer to Congress.

Responsibilities will include:

• helping in recruitment of volunteers
• establishing an on-boarding / registration process for volunteers
• co-ordinating the roles for volunteers
• co-ordinating uniforms
• induction and co-ordination at the Congress on 9-12 July.

Ideally candidates will be based in south-east Queensland.

Keen to help make WDSC 2024 a success and want to find out more? Please contact Liz Willis at liz.willis@downsyndrome.org.au

If youre interested in volunteering at Congress, stay tuned for volunteer opportunities closer to the time.

Please share this opportunity with anyone who may be interested.

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Discover insights on aging and dementia for people with intellectual disability in these upcoming webinars.

Keep in mind, the scheduled times are in the United States, so plan accordingly if you're tuning in from Australia.The National Task Group on Intellectual Disabilities and Dementia Practices advocates for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementias. Their NEW family webinar series about aging and dementia for individuals with an intellectual disability will be held this February through April and includes 5 FREE webinars.While these webinars are free, you DO have to register to be able to attend, so head to to sign up! ... See MoreSee Less

2 days ago
Discover insights on aging and dementia for people with intellectual disability in these upcoming webinars. 

Keep in mind, the scheduled times are in the United States, so plan accordingly if youre tuning in from Australia.

Would you like to make a positive impact on the lives of people with disability? Interested in helping their needs become visible through data?

The Department of Social Services (DSS) would value your insights!Join two panels and have your say on the National Disability Data Asset. Your ideas will help shape how data is ethically used and drive future improvements. Plus, you'll get paid for your time.DSS is looking for people from the disability community, disability researchers and those who know about human rights and ethical data use. If you have a disability, your application gets top priority.Keen to be involved? Learn more and express your interest: View the information in Easy Read format: Expressions of interest close at 7 pm AEST on 29 February 2024. Please share this opportunity with anyone who may be interested. ... See MoreSee Less

4 days ago
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Get In Touch

Down Syndrome Australia

Level 8, 805/220 Collins Street, Melbourne, VIC 3000 

1300 344 954

info@downsyndrome.org.au

Media inquiries: media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Send an enquiry

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