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We are the National peak organisation for people living with Down syndrome and their families

Overview

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

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Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

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This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

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Our work helps the government and the community to make changes that help people with Down syndrome.

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We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

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Very well said! Our Down Syndrome Advisory Network members get involved in advocating for change in lots of different ways. Victorian representative Jenny recently shared her thoughts for a submission to the NDIA on supported decision making. You can read the full submission in Easy Read here: https://www.downsyndrome.org.au/wp-content/uploads/2021/08/DSAN_NDIA_SupportedDecisionMaking.pdf

Very well said! Our Down Syndrome Advisory Network members get involved in advocating for change in lots of different ways. Victorian representative Jenny recently shared her thoughts for a submission to the NDIA on supported decision making.You can read the full submission in Easy Read here: https://downsyndrome.org.au/wp-content/uploads/… ... See MoreSee Less

13 hours ago

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Comment on Facebook Very well said! ...

Council for Intellectual Disability has made an Easy Read fact sheet about caring for your teeth. People with intellectual disability can have more teeth problems than other people, so it is important to take care of your teeth. Dental problems can cause other health problems. Read about how to look after your teeth here: https://cid.org.au/wp-content/uploads/2021/09/Caring-for-your-teeth-Easy-Read-Fact-Sheet.pdf

Council for Intellectual Disability has made an Easy Read fact sheet about caring for your teeth. People with intellectual disability can havemore teeth problems than other people, so it is important to take care of your teeth. Dental problems can cause other healthproblems. Read about how to look after your teeth here: https://cid.org.au/wp-content/uploads/… ... See MoreSee Less

22 hours ago

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Comment on Facebook Council for ...

12-year-old Levi has had many procedures, so he understands that sometimes he needs to have needles to stay healthy. He was a bit nervous before his first COVID-19 vaccination but handled it like a champion and had no side effects afterwards. Levi has had pneumonia and chest infections before, so his family felt it was important to protect him against COVID. He also knows if he gets vaccinated, he can return to Hawaii for a holiday as soon as the borders open. Very good point Levi! ✈️🌴

12-year-old Levi has had many procedures, so he understands that sometimes he needs to have needles to stay healthy. He was a bit nervous before his first COVID-19 vaccination but handled it like a champion and had no side effects afterwards. Levi has had pneumonia and chest infections before, so his family felt it was important to protect him against COVID. He also knows if he gets vaccinated, he can return to Hawaii for a holiday as soon as the borders open. Very good point Levi! ✈️🌴 ... See MoreSee Less

1 day ago

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Comment on Facebook 390525084378985_4153835444714578

This could be my Levi. Got good second dose 2 weeks ago. He's is 13.

If only we were all that lucky that our kids would tolerate needles, blood tests etc. These simple tasks require general aesthetic at hospital 😞

Good on you Levi - take me to Hawaii with you!

So proud of our boy. One step closer to Hawaii and keeping you safe Levi ❤️

Brave boy my son goes for his first shot next Thursday fingers crossed all goes well

I wish I looked as brave as Levi when having my jab 🙈😁

Stay safe young fellow, best wishes for a fantastic future. Will be getting done soon myself.

Levi, you're a little legend! We'll see you at jab no.2 🥰💙

Great stuff Levi! You show those protesting, procrastinating and pontificating how easy and harmless it is 😉.

Way to go Levi 👍🏼

Well done Levi!

Bless him. 💕

Good lad.💙

Way to go. Levi

Beautiful

Onya Levi 💪💪

Well done Levi 👏

Well Done!!

Good on you Levi

Well done Levi 👏🏽💜

Does anyone else find this cruel or is it just me? No way is anyone sticking this poison into ANY of my children.. a 12 year old CANNOT understand informed consent... Sorry if this triggers anyone, I just can’t keep quite anymore!! Our kids have enough of a difficult time detoxing all the toxic shit that is in this world, let alone being pushed into clinical trials which we don’t yet know the long term impacts.. It breaks my heart. My 4 year old daughter with DS has croup right now, I am supporting her with herbs, supplements, salt therapy, lots of rest and love. As her parent, I KNOW the vaccine would cripple her. 😢

👏🏻

Levi 💕💕💕

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Today is World Alzheimers Day. Many people are not aware that there is a link between Down syndrome and dementia. Alzheimer’s disease is the most common form of dementia. People with Down syndrome are more likely to get dementia on average, and at a younger age than other people. While this may be confronting to know, it is also helpful to understand the links between health and lifestyle so that you can take action to reduce the risk of dementia, recognise the signs of dementia, and do what you can to support a person with Down syndrome if they do develop dementia. Read our guide on dementia to learn about the links between lifestyle, health and dementia, how to have a more healthy and active life, and how support a person with Down syndrome and dementia: https://www.downsyndrome.org.au/wp-content/uploads/2020/02/DSA-DA-guide-for-families.pdf

Today is World Alzheimer's Day.Many people are not aware that there is a link between Down syndrome and dementia. Alzheimer’s disease is the most common form of dementia. People with Down syndrome are more likely to get dementia on average, and at a younger age than other people. While this may be confronting to know, it is also helpful to understand the links between health and lifestyle so that you can take action to reduce the risk of dementia, recognise the signs of dementia, and do what you can to support a person with Down syndrome if they do develop dementia.Read our guide on dementia to learn about the links between lifestyle, health and dementia, how to have a more healthy and active life, and how support a person with Down syndrome and dementia:https://downsyndrome.org.au/wp-content/uploads/… ... See MoreSee Less

2 days ago

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Comment on Facebook Today is World ...

Happy Young Man

Happy young man. 💙

Unfortunately I know this

Beautifu. Smile

Get In Touch

Down Syndrome Australia

18/71 Victoria Crescent, Abbotsford VIC 3067

1300 344 954

info@downsyndrome.org.au

Media enquiries media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

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