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Down Syndrome Australia Logo

1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

About us

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Our Values

We are committed to achieving our vision through demonstrating our values of:

  • Inclusion
  • Respect
  • Honesty
  • Empowering

Our collective purpose is leading change through the power of people with Down syndrome and the community.

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

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Join us for a free webinar where we’ll explain some of the key NDIS changes and how they may impact people with disability, families and carers in our community.

In this webinar, we will talk about:➤ Some of the biggest changes to the NDIS➤ When they will happen➤ Where you can go for support and more information📅 Date: Wednesday 30 September⏰ Time: 7.00 – 8.00 PM (AEST)🔗 Register: This webinar is being run by the Down Syndrome Australia Consortium for members of our community. We represent people with intellectual disability caused by chromosomal variation, including people with high and complex support needs. This webinar is for any person with disability, their family, carers or support person can attend. There will be a presentation followed by questions. ... See MoreSee Less

19 hours ago
Join us for a free w

Are you a parent or carer of a child under 9 with disability, developmental delay or neurodivergence?

Researchers from The University of Queensland and University of Sydney to hear about your experiences.They’re running a national survey to learn more about disability supports and services for young children.It asks about the NDIS, health and education services, finding support, and what families want to see in the future.The survey takes about 15 minutes to complete. Your response will be anonymous.The results will help build a better understanding of what families need. They will also support advocacy for better services for children and families across Australia.If this is relevant to your family, we encourage you to take part. You can also share the survey with other families who may be interested.Take the survey here: ... See MoreSee Less

1 day ago
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Want to present at the world’s biggest event for the Down syndrome community?

Applications are now open to present at the 16th World Down Syndrome Congress and 7th Ibero-American Congress on Down Syndrome.The World Down Syndrome Congress brings people with Down syndrome, families, researchers, professionals and organisations from around the world together to share knowledge, experiences and ideas.In 2027, the Congress will be held in Buenos Aires, Argentina, from 22–25 September. Do you have research, a project or an experience to share?People with Down syndrome, families, professionals, researchers, students and organisations can apply to present.Presentations can cover new research, inclusion, practical projects and ideas that can improve everyday life for people with Down syndrome.Applications close 31 October 2026.Learn more and apply to present: Please share this opportunity with anyone in our community who might like to take part.#WorldDownSyndromeCongress #DownSyndromeAustralia Down Syndrome International ... See MoreSee Less

2 days ago
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Get In Touch

Down Syndrome Australia

1300 344 954

info@downsyndrome.org.au

Media enquiries: media@downsyndrome.org.au

Prenatal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Postal address

117/530 Little Collins Street, Melbourne VIC 3000

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About us

We are the National peak organisation for people living with Down syndrome and their families

Find out more