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Down Syndrome Australia Logo

1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

About us

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Our Values

We are committed to achieving our vision through demonstrating our values of:

  • Inclusion
  • Respect
  • Honesty
  • Empowering

Our collective purpose is leading change through the power of people with Down syndrome and the community.

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

Get Social

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Are you a sibling aged 12–18?

Researchers at UNSW are looking for young people who have a brother or sister with a long-term health condition to take part in a short online survey.The survey asks about how teenage siblings use social media and AI to find information about their sibling’s condition or support for their own wellbeing.The research will help build a better understanding of how young people find and use information online.Interested in taking part or finding out more? Email maddison.c.smith@unsw.edu.auParents and carers, please share this opportunity with a young person who may be interested. #DownSyndromeAustralia #Downsyndrome #Siblings #DisabilityCommunity #FamilySupport ... See MoreSee Less

16 hours ago
Are you a sibling ag

Spring is here!

As the days get longer and the weather starts to warm up, spring is a great time to get outside and enjoy being active. Being in nature and regular physical activity can help with:1. physical health and fitness2. strength and balance3. sleep4. mental health and wellbeing5. spending time with friends, family and community.There are lots of ways to enjoy the great outdoors and get moving. You might like walking, gardening, swimming, riding a bike, playing sport or spending time at the park.What do you enjoy most about spring? And what’s your favourite way to get outside and get moving?Tell us in the comments or share a photo with us.#DownSyndromeAustralia #Downdyndrome #DisabilityHealth #HealthAndWellbeing ... See MoreSee Less

2 days ago
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We love seeing people with Down syndrome pursuing the things they love!

Our community is full of creative people like Tammy. Artists, actors, dancers, musicians, makers and more.Tammy loves painting, beading and arts and crafts. She’ll be sharing some of her creations at Down Syndrome Victoria's StepUP! Melbourne in October.With Down Syndrome Awareness Month coming up, we’re looking forward to sharing more stories about the interests, talents and experiences of people with Down syndrome across Australia.If you’re in Victoria, you can join StepUP! Geelong on 4 October or StepUP! Melbourne on 18 October.Learn more and register here: ... See MoreSee Less

3 days ago
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We love this!

Learning to cook is a great way to build practical skills, confidence and independence, while having fun along the way.Last week, Sean, Marley and Fuzz took part in Down Syndrome NSW’s Cooking for Independence workshop, cooking a savoury dish and dessert together.They’ve also been busy creating step-by-step cooking videos to help people with Down syndrome and intellectual disability cook more independently at home.The videos are coming in October. We can’t wait to see them! ... See MoreSee Less

6 days ago
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Get In Touch

Down Syndrome Australia

1300 344 954

info@downsyndrome.org.au

Media enquiries: media@downsyndrome.org.au

Prenatal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Postal address

117/530 Little Collins Street, Melbourne VIC 3000

Send an enquiry

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About us

We are the National peak organisation for people living with Down syndrome and their families

Find out more