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1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

Overview

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

We are committed to achieving our vision through demonstrating our values of:

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Find out more about our work

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

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Annual Reports
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Our Constitution
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Strategic Plan

News

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

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🕰️ LAST CHANGE TO APPLY: Want to build your leadership skills and join a group of people with intellectual disability? We need you!

Join the Learn and Lead Group! We're looking for 10 people to give advice to the new National Centre of Excellence in Intellectual Disability Health.Applications close at 5pm TOMORROW (Friday 26 July 2024.)Why join?- Be a leader and help guide projects.- Share your ideas to improve health services.- Learn new skills in advocacy, research, and public speaking.- Work with a supportive team and make new friends.- Get paid for your time.We welcome everyone, including First Nations, different cultures, rural residents, LGBTQIA+, and those with communication support needs.Visit our website to learn more and apply! Please share this opportunity with anyone who might be interested.#disabilityrights #centreofexcellence #inclusion #haveasay #disabilityleadership #disabilityhealth Image courtesy of Council for Intellectual Disability. ... See MoreSee Less

1 day ago
🕰️ LAST CHANGE TO APPLY: Want to build your leadership skills and join a group of people with intellectual disability? We need you! Join the Learn and Lead Group! Were looking for 10 people to give advice to the new National Centre of Excellence in Intellectual Disability Health. Applications close at 5pm TOMORROW (Friday 26 July 2024.) Why join? - Be a leader and help guide projects. - Share your ideas to improve health services. - Learn new skills in advocacy, research, and public speaking. - Work with a supportive team and make new friends. - Get paid for your time. We welcome everyone, including First Nations, different cultures, rural residents, LGBTQIA+, and those with communication support needs. Visit our website to learn more and apply! https://buff.ly/4eeMweh Please share this opportunity with anyone who might be interested. #disabilityrights #centreofexcellence #inclusion #haveasay #disabilityleadership #disabilityhealth Image courtesy of Council for Intellectual Disability.

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Join the first-ever annual conference of the National Centre of Excellence in Intellectual Disability Health this August!

The conference is free and online.When?Wednesday 21 and Thursday 22 August.What?Get updates on the Centre's work and important information about intellectual disability health.Who it’s for?Everyone involved in the healthcare of people with intellectual disability, including:• People with intellectual disability, including First Nations people• Supporters, friends and family members• Disability professionals and advocates• Health and allied health professionals• Academics and researchersHow to register?Register to attend here: The conference will be recorded. You’ll get links to the recordings and transcripts after the event.Don’t miss out—register now!#intellectualdisability #centreofexcellence #inclusionaustralia ... See MoreSee Less

2 days ago
Join the first-ever annual conference of the National Centre of Excellence in Intellectual Disability Health this August! The conference is free and online. When? Wednesday 21 and Thursday 22 August. What? Get updates on the Centres work and important information about intellectual disability health. Who it’s for? Everyone involved in the healthcare of people with intellectual disability, including: • People with intellectual disability, including First Nations people • Supporters, friends and family members • Disability professionals and advocates • Health and allied health professionals • Academics and researchers How to register? Register to attend here: https://buff.ly/3Sm6f2i The conference will be recorded. You’ll get links to the recordings and transcripts after the event. Don’t miss out—register now! #intellectualdisability #centreofexcellence #inclusionaustralia

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This morning our CEO Darryl Steff gave evidence to the Senate Committee inquiry into the NDIS Amendment. This legislation recently failed to pass the Senate and is now being reviewed by Committee for a second time – with Down Syndrome Australia making submissions and appearances in both Committee processes.

Some of the key points explored by the Committee in response to DSA’s appearance today focused on: ensuring continued support for people with disability throughout the incoming reforms to the NDIS; improvements to ensure the NDIS planning process is developed alongside people with disability, and their supporters, to deliver appropriate plans to meet the needs of people with disability. While recent changes made to the NDIS legislation have been an improvement, DSA is calling on greater improvements to ensure that the NDIS legislation will support people with Down syndrome from birth. ... See MoreSee Less

3 days ago
This morning our CEO Darryl Steff gave evidence to the Senate Committee inquiry into the NDIS Amendment. This legislation recently failed to pass the Senate and is now being reviewed by Committee for a second time – with Down Syndrome Australia making submissions and appearances in both Committee processes. Some of the key points explored by the Committee in response to DSA’s appearance today focused on: ensuring continued support for people with disability throughout the incoming reforms to the NDIS; improvements to ensure the NDIS planning process is developed alongside people with disability, and their supporters, to deliver appropriate plans to meet the needs of people with disability. While recent changes made to the NDIS legislation have been an improvement, DSA is calling on greater improvements to ensure that the NDIS legislation will support people with Down syndrome from birth.

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Get In Touch

Down Syndrome Australia

Level 8, 805/220 Collins Street, Melbourne, VIC 3000 

1300 344 954

info@downsyndrome.org.au

Media inquiries: media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Send an enquiry

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