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1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

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About us

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Our Values

We are committed to achieving our vision through demonstrating our values of:

  • Inclusion
  • Respect
  • Honesty
  • Empowering

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

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Our Ageing Well with Down Syndrome project is now in full swing!

In partnership with nib foundation, we’re creating practical, accessible resources to support the health and wellbeing of people with Down syndrome. We’re excited to welcome Rohan Fullwood as Project Officer.We’ve also brought together a brilliant Ageing Advisory Group, who will help guide the project:Emily Porter – DSA Health AmbassadorDr Madeleine Healy – Geriatrician & researcher, Monash UniversityRebecca Konz – Associate Professor & Neuropsychiatrist, UNSW SydneyMargot Elliffe – Parent of a 38-year-old woman with Down syndrome, retired nurseHannah Holmes – Senior Manager, Honeysuckle HealthTheir insights will help us make resources that are practical, relevant and inclusive.More updates coming soon!#Downsyndrome #Inclusion #Ageing ... See MoreSee Less

21 hours ago
Our Ageing Well with Down Syndrome project is now in full swing!

In partnership with nib foundation, we’re creating practical, accessible resources to support the health and wellbeing of people with Down syndrome. 

We’re excited to welcome Rohan Fullwood as Project Officer.

We’ve also brought together a brilliant Ageing Advisory Group, who will help guide the project:

Emily Porter – DSA Health Ambassador

Dr Madeleine Healy – Geriatrician & researcher, Monash University

Rebecca Konz – Associate Professor & Neuropsychiatrist, UNSW Sydney

Margot Elliffe – Parent of a 38-year-old woman with Down syndrome, retired nurse

Hannah Holmes – Senior Manager, Honeysuckle Health

Their insights will help us make resources that are practical, relevant and inclusive.

More updates coming soon!

#Downsyndrome #Inclusion #Ageing

✨What a day! What a group!

Our Supporting My Rights Project Reference Group came together in Melbourne for an exciting day of recording and connection.The group worked on a series of podcasts for participants and service providers about what good service looks like and how to communicate better. It was a fantastic chance to meet face to face, have some fun and share their voices as part of the project.Tomorrow, they’re jumping in front of the camera for an Easy Read photo shoot! #disabilityrights #inclusion #humanrights ... See MoreSee Less

2 days ago
✨What a day! What a group!

Our Supporting My Rights Project Reference Group came together in Melbourne for an exciting day of recording and connection.

The group worked on a series of podcasts for participants and service providers about what good service looks like and how to communicate better. 

It was a fantastic chance to meet face to face, have some fun and share their voices as part of the project.

Tomorrow, they’re jumping in front of the camera for an Easy Read photo shoot! 

#disabilityrights #inclusion #humanrightsImage attachmentImage attachment+5Image attachment

The Australian Government is reviewing the Disability Discrimination Act (DDA) to make sure it protects people with disability.

We encourage everyone in our community to have their say. You can share your thoughts on whether the DDA is working, any discrimination you’ve experienced, or what inclusion means to you.You can make a submission in writing, or record it as audio or video, or complete the community survey.Find out more, including Easy Read information: https://ag.gov.au/rights-and-protections/…Consultation closes 24 October 2025. ... See MoreSee Less

3 days ago
The Australian Government is reviewing the Disability Discrimination Act (DDA) to make sure it protects people with disability.

We encourage everyone in our community to have their say. You can share your thoughts on whether the DDA is working, any discrimination you’ve experienced, or what inclusion means to you.

You can make a submission in writing, or record it as audio or video, or complete the community survey.

Find out more, including Easy Read information: https://www.ag.gov.au/rights-and-protections/human-rights-and-anti-discrimination/australias-anti-discrimination-law/review-disability-discrimination-act

Consultation closes 24 October 2025.

Team DSA was in Melbourne this week for a special planning catch-up!

It was a fantastic chance to connect in person, celebrate what we’ve achieved and share ideas for making an even bigger difference for the Down syndrome community.We left inspired and energised. Now we’re ready to put our plans into action and keep working towards a fairer, more inclusive world for people with Down syndrome. #DownSyndromeAustralia #DSA #downsyndrome ... See MoreSee Less

6 days ago
Team DSA was in Melbourne this week for a special planning catch-up!

It was a fantastic chance to connect in person, celebrate what we’ve achieved and share ideas for making an even bigger difference for the Down syndrome community.

We left inspired and energised. Now we’re ready to put our plans into action and keep working towards a fairer, more inclusive world for people with Down syndrome. 

#DownSyndromeAustralia #DSA #downsyndromeImage attachmentImage attachment+1Image attachment

Get In Touch

Down Syndrome Australia

Level 8, 805/220 Collins Street, Melbourne, VIC 3000 

1300 344 954

info@downsyndrome.org.au

Media inquiries: media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Send an enquiry

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About us

We are the National peak organisation for people living with Down syndrome and their families

Find out more