Down Syndrome Australia thumbnail.
Down Syndrome Australia Logo

1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

About us

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Our Values

We are committed to achieving our vision through demonstrating our values of:

  • Inclusion
  • Respect
  • Honesty
  • Empowering

Our collective purpose is leading change through the power of people with Down syndrome and the community.

Follow Us

Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

Get Social

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

Behind the scenes 📸

We've recently had a wonderful time filming with Emily and Rohan, two of our Health Ambassadors and lived experience advisors, as part of our Ageing Well with Down Syndrome project.We’re working on a series of accessible resources to support healthy ageing and wellbeing for people with Down syndrome.Emily and Rohan have both played an important role in shaping this work. We’re excited to share the new resources with you soon! #ageingwell #DownSyndromeAustralia #DSA #HealthAmbassadors #nib ... See MoreSee Less

16 hours ago
Behind the scenes �Image attachmentImage attachment

DSA has joined with other Disability Representative Organisations across Australia to release a joint statement responding to recent announcements about Thriving Kids and disability supports.

While the delay to Thriving Kids is welcome, a delay alone does not make reform safe. These decisions go beyond one program and will shape the supports people with disability can access across their lives. We’re calling on governments to use this time to fix known gaps, commit to nationally consistent foundational supports and genuinely co-design reforms with people with disability. Getting this right matters. Getting it wrong will widen gaps and put more pressure on families and services. Read the joint statement: ... See MoreSee Less

2 days ago
DSA has joined with

Want clearer information about your rights and the NDIS?

The Supporting My Rights app helps people with Down syndrome and intellectual disability understand their rights and use the NDIS with confidence. Service providers can use it too.Watch our new video, where our team member Lachie introduces the app and shows how it works.If you haven't already, download the app and give it a try.Apple: Google Play: #SupportingMyRights #DownSyndromeAustralia #Disabilityrights #NDIS #DSA #livedexperience ... See MoreSee Less

3 days ago

Rachel has been working at Perth Children’s Hospital since May 2025.

She works one day a week in an admin role, supporting the hospital team. Her role includes updating the doctor roster, creating staff photo boards, packing clinic packs, watering plants, photocopying, delivering mail and setting up and packing up meeting rooms. Rachel’s story shows how the right support, clear systems and a welcoming workplace can lead to meaningful employment and lasting confidence. Read Rachel’s full story on our Right to Work website: While you’re there, you can also find helpful information about getting a job, or employing someone with Down syndrome.#employmentconnections #RightToWork #openemployment #Downsyndrome #disabilityemployment ... See MoreSee Less

5 days ago
Rachel has been work

Get In Touch

Down Syndrome Australia

Level 8, 805/220 Collins Street, Melbourne, VIC 3000 

1300 344 954

info@downsyndrome.org.au

Media inquiries: media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Send an enquiry

  • This field is for validation purposes and should be left unchanged.
Banner section image

About us

We are the National peak organisation for people living with Down syndrome and their families

Find out more