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1300 344 954

We are the National peak organisation for people living with Down syndrome and their families

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We all deserve a fair wage. People with Down Syndrome are working for as little as $3 an hour. You have the power to ensure real wages for real work.

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About us

We are the National peak organisation for people living with Down syndrome and their families.

People with Down syndrome are at the centre of all the work that we do.

We work with the Down Syndrome Advisory network to get their ideas and suggestions about our work.

We work to create change in social and public policy.

We want to make sure people understand the experiences of people with Down syndrome and their families. All our work is informed by the UN Convention on the Rights of Persons with Disabilities.

We work together with state and territory organisations to achieve our vision.

Our Vision

People living with Down syndrome are valued and have full access to social and economic inclusion in order to achieve their full potential.

Our Values

We are committed to achieving our vision through demonstrating our values of:

  • Inclusion
  • Respect
  • Honesty
  • Empowering

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Down Syndrome Australia

Down Syndrome Australia logo

Down Syndrome Australia is the national peak organisation for people with Down syndrome in Australia.

A map of Australia and the Down syndrome Australia logo

This means bringing together and working with the other Down syndrome associations around the country.

A man and woman stand next to each other

People with Down syndrome are at the centre of all the work we do.

Down syndrome Advisory network group photo

We work with the Down Syndrome Advisory Network (DSAN). This is a group of people with Down syndrome who give us their ideas and suggestions about our work.

A mother, father and daughter stand together outdoors

We want to make sure people understand the experiences of people with Down syndrome and their families.

A board meting with people sitting around a meeting table

Our work helps the government and the community to make changes that help people with Down syndrome.

United National logo

We use the United Nations Convention on the Right of Persons with Disabilities to guide us in our work. This tells us all about the rights of people with disabilities.

Get Social

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Today Down Syndrome Australia spoke at the Inquiry into the Thriving Kids initiative.

Our CEO, Darryl Steff, spoke with members from the Standing Committee on Health, Aged Care and Disability, and presented our views on the Thriving Kids initiative as well as answering questions from the Committee. You can see the submission we made to the Committee here. https://downsyndrome.org.au/blog/submission/… ... See MoreSee Less

1 day ago
Today Down Syndrome Australia spoke at the Inquiry into the Thriving Kids initiative. 

Our CEO, Darryl Steff, spoke with members from the Standing Committee on Health, Aged Care and Disability, and presented our views on the Thriving Kids initiative as well as answering questions from the Committee.  

You can see the submission we made to the Committee here. https://www.downsyndrome.org.au/blog/submission/inquiry-into-the-thriving-kids-initiative/

Last week, Bus Stop Films celebrated its 16th birthday at Admiralty House in Sydney.

The event was hosted by our Patron, Governor-General of Australia, Sam Mostyn. Audrey, from our Learn and Lead Group, is a Bus Stop Films Ambassador. She gave a fantastic speech about the opportunities Bus Stop offers for people with intellectual disability. This includes workplace experience in the screen and media industry, skill development, training and networking. Many people from our community have taken part and gained confidence, creativity and connection. Bus Stop Films' online info sessions, open days and enrolments are now open across the country for budding filmmakers: #BusStopFilms #DownSyndromeAustralia #DSA #Intellectualdisability ... See MoreSee Less

1 day ago
Last week, Bus Stop Films celebrated its 16th birthday at Admiralty House in Sydney.  

The event was hosted by our Patron, Governor-General of Australia, Sam Mostyn. 

Audrey, from our Learn and Lead Group, is a Bus Stop Films Ambassador. She gave a fantastic speech about the opportunities Bus Stop offers for people with intellectual disability. This includes workplace experience in the screen and media industry, skill development, training and networking. 

Many people from our community have taken part and gained confidence, creativity and connection. 

Bus Stop Films online info sessions, open days and enrolments are now open across the country for budding filmmakers: https://buff.ly/q00nGs6 

#BusStopFilms #DownSyndromeAustralia #DSA #IntellectualdisabilityImage attachmentImage attachment+1Image attachment

The Supporting My Rights app and resources are almost here!

In this video, our Supporting My Rights Reference Group members share why they joined, why co-design matters and what they’ve loved most about being part of the project.They have worked hard to make the NDIS easier to understand for people with intellectual disability.The app will be ready to download from 14 November. Stay tuned for details! #SupportingMyRights #rights#Inclusion #NDIS #DownSyndromeAustralia ... See MoreSee Less

2 days ago

Reminder: Join us Tuesday 28 October for a free 90-minute webinar with Dr Cathy Franklin.

Learn about Down Syndrome Regression Disorder (DSRD) – what it is, how it’s diagnosed, what regression can look like and available treatment options.This webinar is designed for parents, siblings and carers of people with Down syndrome.Please share this post with anyone who might benefit.Learn more and register: ... See MoreSee Less

4 days ago
Reminder: Join us Tuesday 28 October for a free 90-minute webinar with Dr Cathy Franklin.

Learn about Down Syndrome Regression Disorder (DSRD) – what it is, how it’s diagnosed, what regression can look like and available treatment options.

This webinar is designed for parents, siblings and carers of people with Down syndrome.

Please share this post with anyone who might benefit.

Learn more and register: https://buff.ly/Ns91JSC

Get In Touch

Down Syndrome Australia

Level 8, 805/220 Collins Street, Melbourne, VIC 3000 

1300 344 954

info@downsyndrome.org.au

Media inquiries: media@downsyndrome.org.au

Pre-natal and New Families

1300 881 935

Contact your state or territory Down Syndrome Association to speak to a parent of a child with Down syndrome.

Send an enquiry

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About us

We are the National peak organisation for people living with Down syndrome and their families

Find out more