Ageing Well with Down Syndrome

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Supporting healthy ageing and wellbeing for people with Down syndrome

People with Down syndrome are living longer than ever before. That is something to celebrate. As we live longer, good health information matters more than ever.

About the project 

Easy Read fact sheets 

Keeping My Body healthy fact sheet
Menopause fact sheet
Anxiety and depression fact sheet
Grief and loss fact sheet
Dementia fact sheet

Plain English fact sheets 

Keeping my body health in Plain English
Perimenopause and menopause in Plain English
Anxiety and depression in Plain English
Grief and loss in Plain English
Dementia in Plain English

Perspectives on ageing well with Down syndrome

Project goals

  • Improve health equity for people with Down syndrome through development of new, accessible resources, which promote healthy ageing for people with Down syndrome.
  • Increase awareness amongst the Down syndrome population and healthcare professionals, of the health issues associated with ageing for people with Down syndrome.
  • Establish a national approach for knowledge sharing, including hosting of project resources on the DSA National Resources Hub.

Ageing Advisory Group Members 

Project Officer – Rohan Fullwood, Health Ambassador 

Health Professional – Rebecca Koncz

Associate Professor & Chair, Intellectual Disability Mental Health | UNSW Sydney; Neuropsychiatrist | Intellectual and Developmental Disability, SESLHD 

Health Professional – Dr Madeleine Healy

Geriatrician, Medical Lead Cognitive Dementia and Memory Service | Aged and Rehabilitation Division; PhD candidate, Monash University 

Family Member and Health Professional – Margot Elliffe

RN (retd), Midwife and Child and Family nurse, parent of a 38 year old daughter with Down syndrome 

Health Ambassador representative – Emily Porter 

nib foundation representative – Hannah Holmes

 Senior Quality and Innovation Manager

DSA acknowledges and is grateful for the funding provided by nib foundation.

Find out more about our partnership here.

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Down Syndrome Australia made this project to help people with Down syndrome stay well as they get older.

Two people doing their shopping

These fact sheets and videos explain how to look after your body and stay well.

We also explain how to look after your mental health.

A woman with Down syndrome gives a speech

We listened to people with Down syndrome, their families and carers.

We asked what was important to them.

Easy Read fact sheets

Video