DSRD Resources

Down Syndrome Regression Disorder:

a Self Assessment for families

A symptom checklist for families to use when visiting a specialist or a General Practitioner.

This resource includes diagnostic advice for doctors and specialists.

Down Syndrome Regression Disorder – Update for Families

An update on Down Syndrome Regression Disorder from the Down Syndrome Medical Interest Group.

Regression in people who have Down’s syndrome – a guide from the Down’s Syndrome Association

A publication by the Down’s Syndrome Association (UK).

Down Syndrome Regression Disorder – a Symptom Checklist

A checklist to monitor symptoms, from the National Down Syndrome Society (NDSS).

Mental Wellness in Adults with Down syndrome: A Guide to Emotional and Behavioral Strengths and Challenges

Mental Wellness in Adults with Down Syndrome (2nd edition) is a free guide by Dr. McGuire and Dr. Chicoine.

Assessment and Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus

This article describes an evidence-based and standardised approach to work-up and diagnostic criteria for regression in Down syndrome. Published by Santoro et al., 2022.

Find more in our Resource Hub

See the full range of resources on Down Syndrome Regression Disorder in our Resource Hub.