National Disability Insurance Scheme
The National Disability Insurance Scheme (NDIS) has been established to provide individualised support for eligible people with permanent and significant disability, their families and carers.
You can get more information about the NDIS on the NDIS website.
You can find resources about the NDIS in our Resource Hub.
Disability Loop is also a useful site that provides accessible information about the NDIS.
People with Down syndrome are currently not considered automatically eligible for the NDIS. In order to access the Scheme, you must complete an access request form.
You can call 1800 800 110 to make an Access Request or you can ask for a form. If you need help filling in the form or making the call, you can contact your Local Area Coordinator, Early Childhood Early Intervention partner or your local NDIA office. You can also get in touch with Down Syndrome Australia for any assistance.
Although Down syndrome does not have automatic eligibility, almost all of the people who have applied have been accepted into the NDIS. If you have any difficulty with getting access to the NDIS contact DSA immediately by phone or email.
If you meet the access requirements, you will become an NDIS participant (someone who is using the NDIS).
The next step is to make a plan about your goals and what support you will need. The NDIS will also give you a booklet to help you think about what you want.
You will meet with an NDIS planner to talk about what supports are needed. When you have finished talking about all your ideas with the planner, they will give you a draft plan. The draft plan lets you know what the NDIS thinks you should have. It also lets you think about any changes you want before your plan is finished.
If you don’t agree with the decisions the NDIS makes about what you can get, you can ask them to review the plan. Once everyone agrees on your plan, it becomes an official plan. This is when you will start to get support from the NDIS.
You can get more information about the NDIS planning process from the NDIS website here.
Early Childhood Early Intervention (ECEI) is the process of providing specialised support and services for infants and young children with developmental delays or disabilities, and their families in order to promote development, well-being and community participation. Children with Down syndrome who are under the age of seven are automatically eligible for Early Childhood Early Intervention.
You can work with an Early Childhood Partner who will provide you with information and connect you with supports and services available in your local area.
Information is available about the Early Childhood Early Intervention approach (ECEI) on the NDIS website to help families understand how to get the right support for their child with Down syndrome.
You can also contact your local state or territory organisation to find out more about services in your area.
Your local Down Syndrome Association can offer advice and information regarding your child’s development, and can also put you in touch with other families to talk about your experiences and share ideas.
There is a wide range of resources and fact sheets on the NDIS website.
New Participant Booklets
The NDIS have recently released three new participant booklets. The booklets cover Understanding the NDIS, Planning and Using your NDIS plan. The NDIS booklets are available on the NDIS website.
Easy Read Booklets
There are a number of resources about the NDIS in Easy Read. You can find the Easy Read booklets on the NDIS website.
NDIS Guide to Self Management
The NDIS have recently released a Guide to Self Management. The purpose of this guide is to better support participants and their nominees to self-manage their NDIA budget so they have more control, choice and flexibility in arranging and paying for their NDIS supports. The guide helps self-managers, and people interested in self-managing their NDIA budget, understand the benefits of self-management, their responsibilities and how to self-manage effectively.