Resource Category
Health
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HealthThese Cancer Council resources support parents and carers to improve the HPV vaccination experience for their child with disability.
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Down Syndrome Good Health App
Aug 2023HealthThis health app is for adults with Down syndrome to keep a diary of daily meals, water, exercise and activities.
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Regression in people who have Down’s syndrome – a guide from the Down’s Syndrome Association
Aug 2023Down Syndrome Regression DisorderA publication by the Down's Syndrome Association (UK)
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Down Syndrome Regression DisorderA checklist to monitor symptoms, from the National Down Syndrome Society (NDSS).
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Down Syndrome Regression Disorder Checklist – a short video guide by NDSS and Dr Jonathan Santoro
Aug 2023Down Syndrome Regression DisorderA short video guide to the NDSS Down syndrome Regression disorder Checklist
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Yearly health checks
Jul 2023HealthThis Easy Read guide by the Department of Health and Aged Care explains what happens at a yearly health check.
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HealthThis free online short course was developed by Down Syndrome Australia. It is accredited by the RACGP for 6 CPD points. This e-learn is designed for anyone working or studying in health.
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HealthThis NDSS fact sheet includes a symptom checklist for symptoms found in Down syndrome regression disorder.
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Down Syndrome Regression DisorderRead the full article on "Immunotherapy responsiveness and risk of relapse in Down syndrome regression disorder"
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Down Syndrome Regression DisorderDr Cathy Franklin discusses regression disorder in young people with Down syndrome. This webinar was hosted by Down Syndrome Queensland.
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Down Syndrome Regression DisorderMental Wellness in Adults with Down Syndrome is a free guide by Dr. McGuire and Dr. Chicoine.
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Assessment and Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus
Aug 2022Down Syndrome Regression DisorderResearch published by Santoro et al, 2022 - article freely available