Resource Category
PDF
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Down Syndrome Regression disorder – What it is and what can be done about it by Dr Cathy Franklin
Aug 2024Down Syndrome Regression DisorderPresentation slides from Dr Cathy Franklin's talk at the 2024 World Down Syndrome Congress.
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Down Syndrome Regression Disorder
An update on Down Syndrome Regression Disorder from the Down Syndrome Medical Interest Group.
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Employment
Lots of Socks is a resource for Down syndrome awareness and inclusion. This guide for workplaces explains how to celebrate and fundraise for Down syndrome.
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Lots of Socks resource for schools
Feb 2024EducationLots of Socks is a Down syndrome awareness and inclusion package for school aged children.
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General
The easy read Uluru Statement from the Heart is by First People’s Disability Network and CID.
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The Voice to Parliament
Oct 2023GeneralThis easy read guide by CID is about the Voice to Parliament.
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Regression in people who have Down’s syndrome – a guide from the Down’s Syndrome Association
Aug 2023Down Syndrome Regression DisorderA publication by the Down's Syndrome Association (UK)
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Down Syndrome Regression Disorder
A checklist to monitor symptoms, from the National Down Syndrome Society (NDSS).
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Health
This NDSS fact sheet includes a symptom checklist for symptoms found in Down syndrome regression disorder.
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Down Syndrome Regression Disorder
Read the full article on "Immunotherapy responsiveness and risk of relapse in Down syndrome regression disorder"
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Becoming a Teenager
Mar 2023GeneralThis resource is for parents and supporters. It covers some of the key administrative changes you can assist with for your teenager.