Chief Executive Officer
Dr Ellen Skladzien
Ellen has been CEO of Down Syndrome Australia since 2016. She has extensive experience in advocacy, leadership and strategic management in the not-for-profit sector. She has expertise in driving change in the disability, health and aged care system through evidenced-based advocacy. She is passionate about ensuring that the voices of people with lived experience are at the centre of the work she does. Ellen has a Master’s degree in Clinical Neuropsychology and a Ph.D. in Cognitive Psychology.
Jess has been involved with Down Syndrome Australia since its early days, volunteering with the first CEO, Catherine McAlpine. Over this time Jess has had a varied role that she enjoys immensely in supporting the executive team of DSA. Now that the team is developing and as DSA moves from strength to strength, Jess focuses on delivering support to the CEO and Chair, and delivering the World Down Syndrome Congress to Brisbane in 2022.
National ILC Project Manager
Kylie leads Down syndrome Australia’s projects that support and promote community inclusion for people with Down syndrome, including the design and development of the “Ask about Down syndrome” app, Community Inclusion Toolkit and Information for Life resources. Kylie has extensive experience managing resource development, project management and reporting in senior roles in the not-for-profit sector over the past 20 years.
Information and Communications Manager
Zoe du Cann
Zoe oversees the implementation of the national information project for Down Syndrome Australia and coordinates resources, information and national communications. Zoe is an allied health professional with 20 years’ of experience in non-profit organisations, disability, rehabilitation, and assistive technologies. She is also undertaking post-graduate research on disability, dementia and the use of smart technology.
Managing Editor: Voice
Lisa is the Managing Editor of Voice, the journal of Down Syndrome Australia. She is a photojournalist and communication specialist who has worked in the media landscape for 15 years. Since 2018 she has specialised in disability, human rights and health related content, working with advocacy bodies, government departments and service providers to share stories about issues important to people with disability.
Information Officer (South Australia)
Samantha is the Information Officer for South Australia, a new project that is focusing on providing information and support to people with Down Syndrome and their families. Samantha has a child with Down Syndrome and has been an active member of the community in South Australia. She has a background in education, although she has been managing the family owned small law firm she established with her husband in 2015. She is passionate about inclusive education, supporting pregnant mums who have been given a prenatal diagnosis, and helping families connect.
Health Program Manager
Natalie leads the Health Project for DSA. Natalie holds a Master’s degree in Public Health, has an extensive experience in health and has worked as an ICU Nurse and Hospital Coordinator in Melbourne’s Hospitals for over 25 years. Natalie brings with her knowledge and experience of Down syndrome from firsthand experience, as a mother of an adult daughter with Down syndrome and also as a board member and later Chair of Down Syndrome Victoria. Natalie has a strong belief that everyone has the right to be able to advocate for themselves (with or without support, as they choose) and should be listened to and communicated with.
DSA Health Ambassadors
Ten self-advocates with Down syndrome from across Australia work with DSA as Health Ambassadors. Each Ambassador has a story to tell about their journey within the health system. The Health Ambassadors want to share this information to ensure that in the future, people with Down syndrome get access to better quality care. These self-advocates believe that through improved communication between people with intellectual disability and health care workers, health outcomes for people with disability will improve.
Read more about our Health Ambassadors or book a Health Ambassador to speak at your organisation on our website here.