My Voice My Health
The My Voice My Health project aims to support better health outcomes for people with Down Syndrome. It was managed and designed by Down Syndrome WA with funding provided by the West Australian government Department of Communities. The outcomes are:
- My Voice My Health web application
- 10 health fact sheets
- Health Ambassadors program
My Voice My Health Web Application
The My Voice My Health web application was designed by Down Syndrome WA and developed by Push Consulting with funding provided by the Western Australia Government Department of Communities.
It is a resource hub that provides information on the health considerations of people with a diagnosis of Down syndrome.
See the Media Statement from Minister for Disabilities here – New digital web app supports better health outcomes for people living with Down syndrome
Health Fact Sheets
- 10 Tips When Treating Someone with Down Syndrome
- A Sleep Study Experience
- CARE Call for Perth Children’s Hospital
- Communicating Tips for Working with a Person with Down Syndrome and/or Developmental Disability
- Communicating with Parents and Carers of a Person with Down Syndrome
- Down Syndrome and Diabetes
- Growth Charts for Children with Down Syndrome
- Home Visiting Services. Perth Children’s Hospital (PCH)
- Navigating the Hospital System and Supports
- Providing Feedback About Your Hospital Experience
The Health Ambassadors are a group of individuals with Down syndrome, who work to inform health care workers about how best to include people with Down syndrome in their own health conversations.
The Health Ambassadors work to improve health outcomes for people with Down syndrome :
- Informing and working with health care workers and those studying to become health workers, on how inclusive communication makes a positive difference to outcomes
- Working with health care workers in all settings to educate them about Down syndrome
- Telling their health stories and how good communication can make a difference
- Presenting to health care workers and students
- Co-designing resources for health care workers to use
- Taking on advisory roles on health issues and research.
Interested in having a Health Ambassador present a talk at your workplace or educational institution? Please contact DSWA.