We're the national voice for Down syndrome

Down Syndrome Australia is made up of eight State and Territory associations providing support, information and resources to people with Down syndrome and their families across the country. The associations have come together to represent and progress the needs, interests and aspirations of people with Down syndrome and those that support them.

Membership of your State or Territory Association provides much-needed funds and links you in with the latest information and resources – and especially the vibrant community of people with Down syndrome, their families and supporters.

Make sure you head to your local state or territory website for information local to your area! 

NDIS brings positive change but falls short in key areas

27 September 2018

Down Syndrome Australia’s 2018 national survey has found people with Down syndrome and their families are receiving more support than ever before but there are problems with access to the NDIS and the level of knowledge about Down syndrome. 

2018 National Survey Results (pdf)

Comment by Down Syndrome Australia CEO Dr Ellen Skladzien.


What your NDIS experience tells us

27 September 2018


Insights into how the NDIS is working for people with Down syndrome and their families will inform our advocacy and help us develop better information resources for our community, writes DSA Chief Executive Officer Dr Ellen Skladzien.

NDIS Survey 2018

14 June 2018

Down Syndrome Australia would like to know how your experience with the NDIS has been. You can complete a short survey to let us know about your experience here. As a token of thanks, you will be eligible to enter into a draw for a $200 gift card upon completion of the survey.  

Communications Manager position

29 May 2018

Down Syndrome Australia is seeking an experienced, organised professional to take on the role of National Communications Manager.  Read more about the role here