Almost six months have passed since the World Down Syndrome Congress, and I’ve had a lot to think about.
As part of Down Syndrome Victoria’s Advisory Network, I want to share what I took away from the experience and what it means to me to be truly included.
Coming out of Congress, I felt inspired. I listened to all the people speaking and watched the videos because, like everyone, I want to be included. I want to feel like I am achieving something – like I matter. I felt especially moved by the video about Sir Robert Martin. His story was sad, and I felt sorry for him, but he made such good points about making sure people with disabilities are included. My favourite presentation was the session with Roy McConkey, which included a panel of people with Down syndrome sharing their experiences. It was powerful to see people like me being listened to and taken seriously.
Since the Congress I have been thinking a lot about why people with Down syndrome should be treated equally. It’s really important to me – and other people like me – that we aren’t treated differently. Every person is unique, with our own way of thinking and our own personality. There’s a good saying about this: it doesn’t matter what someone looks like on the outside, it’s the inside that counts. Inside, people with Down syndrome have the same desire to live a good life, just like anyone else.
We all deserve to choose our own path in life and be the person we want to be. No one should feel bullied or made fun of. The world becomes a better place when everyone is included, and we lose that when people are put down or laughed at. When I feel included, I feel excited, like I have a role to play. It’s good to have ideas, and even better when those ideas matter. I need action to feel supported. Words alone aren’t enough – show me that my opinion matters!
Here are three ways to show people with Down syndrome that they matter:
- Take people seriously and listen to their thoughts, ideas and voices.
- Support people to be autonomous, make their own choices and be independent.
- Learn more about Down syndrome and understand what it’s really like to live with it.
I want to keep things moving – not feel like I’m just pushing a barrel uphill. So, what can you do today to support people with Down syndrome?
Kez Glenane
DSV Advisory Network member