Down Syndrome Regression Disorder resources
Down Syndrome Regression Disorder:
a Self Assessment for families
A symptom checklist for families to use when visiting a specialist or a General Practitioner.
This resource includes diagnostic advice for doctors and specialists.
Down Syndrome Regression Disorder – Update for Families
An update on Down Syndrome Regression Disorder from the Down Syndrome Medical Interest Group.
Regression in people who have Down’s syndrome – a guide from the Down’s Syndrome Association
A publication by the Down’s Syndrome Association (UK).
Down Syndrome Regression Disorder – a Symptom Checklist
A checklist to monitor symptoms, from the National Down Syndrome Society (NDSS).
Mental Wellness in Adults with Down syndrome: A Guide to Emotional and Behavioral Strengths and Challenges
Mental Wellness in Adults with Down Syndrome (2nd edition) is a free guide by Dr. McGuire and Dr. Chicoine.
Assessment and Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus
This article describes an evidence-based and standardised approach to work-up and diagnostic criteria for regression in Down syndrome. Published by Santoro et al., 2022.
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