How to talk about Down syndrome

Language is very important in how we think about and speak about the world. This section provides some guidelines for talking about Down syndrome.
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People with Down syndrome should be referred to with the same respect we expect people to show everyone.

The Power of Language

Language is very important in how we think about the world. It is important to respect the language that people with disability use to describe themselves.

The commonly accepted language to describe Down syndrome is:

  • a person with Down syndrome or a person who has Down syndrome.

If you are referring to how a person with disability learns and communicates you may also say:

  • a person with an intellectual disability.

You should not use negative language such as:

  • ‘suffer from’
  • ‘a victim of’ or
  • ‘afflicted by’ Down syndrome.

People with Down syndrome are not by definition ‘special’, ‘poor’ or ‘unfortunate’.

Talking to people with Down syndrome

Use plain language and speak respectfully. Try to not make assumptions about how much the person can understand. 

A few key things to keep in mind when communicating with a person with Down syndrome:

  • Assume competence. Give people a chance to show how capable they are.
  • Always speak directly with the person with Down syndrome, not the person with them. Give them time to respond. Take their lead on what support they need to communicate.
  • Know that every person with Down syndrome is unique, with their individual personality, strengths and support needs. Find out what support they need.

Find out more about talking to people with Down syndrome in our Communication and Language Fact Sheet.

Media Guidelines

Are you about to write, film or photograph a piece about a person with Down syndrome? Please take a moment to check our media guidelines to help tell your story in a respectful way.

How to talk about Down syndrome

A man and a woman talk to each other

Language is very powerful.

The words we use show how we feel about something.

The words we use can also affect the way other people think.

Two women talk to each other

So, it is very important to use the right language and be respectful when we are talking or writing about people with Down syndrome, just as we do with anyone else.

A man and a woman talking

People with disability have the right to decide how to talk about themselves. Other people need to respect that right.

Here are some examples

A man holds a checklist with ticks

You can say someone is:

A person with Down syndrome, or

A person who has Down syndrome.

If you are talking about how a person learns and communicates, you might say they are:

A person with an intellectual disability.

A man holds a ticklist with crosses

You should not describe people with Down syndrome using words such as:

‘Suffers from’ Down syndrome.

‘A victim of’ Down syndrome

Afflicted by’ Down syndrome.’

Special

Poor

Unfortunate

Talking with people with Down syndrome

A man and a woman talking to each other

Use plain, everyday language.

Speak with respect.

Don’t try to guess how much the person can or can’t understand.

A man looks at something a woman is writing

Assume the person can understand and reply to you.

Give people with Down syndrome the chance to show what they can do.

Two women stand talking

Speak directly to the person, not the person with them.

Give the person time to reply.

Every person with Down syndrome is different. Some people will need support to communicate.

A woman uses a communication device

Find out what support the person needs, and communicate in the way that works best for them.

A fact sheet about communication

You can find a Communication and Language Factsheet at the bottom of this page.

A person with a disability speaks to the media

You can find Media Guidelines at the bottom of this page.

These will help you to be respectful if you are writing about, filming or photographing people with Down syndrome

Useful links

You can find a Communication and Language Factsheet here

You can find our Media Guidelines here.