Who we are
The ACT Down Syndrome Association (ACTDSA) was formed in 1987 by a group of parents as a self help organisation. The original vision of the group was to form a resourceful, supportive and beneficial association for members with Down syndrome and their families living in the ACT and surrounding regions.
We have grown significantly and now provide information and support to thousands of people across the ACT and surrounding region. While are origins are in supporting families with a child with Down syndrome, in 2019 we broadened our scope to supporting all people with intellectual disability.
“The ACT Down Syndrome Association (ACTDSA) aims to improve the quality of life for people with Down syndrome and other intellectual disabilities by providing support and information to their families, carers, schools, employers and other organisations.” – ACTDSA 2020 – 2025 Strategic Plan
Who we help
We also support more than just families, we also provide information and support to:
- Daycare’s and Pre-Schools
- Primary School
- High Schools
- Community Groups (sporting, dance, ect)
- Medical Professionals
- Government bodies
- Any other interested people!
How we can help
We are able to provide information, linkages and referrals for whatever your question may be. As well as answering questions and providing information we also provide:
Parent to parent support
We are able to put you into contact with other parents and families of a person with a disability regardless of age!
Workshops for people with disability
We run a variety of workshops and courses for people with Down syndrome and intellectual disability. For more information please visit our Adults with Down syndrome page.
Workshops for families
We run a variety of workshops for families of a person with Down syndrome and intellectual disability covering all life stages. For more information on workshops for families please visit our Parents, Families and Carers page.
Throughout the year we hold a number of community events that are open to all Canberrans. For more information please visit our Events Page.
Advocacy to ACT Government
Advocating for the rights and inclusion of people with intellectual disability in all aspects of the Canberra community. To effectively do this we have representatives on various ACT Government Reference Groups.
Support for Educators
We provide support to education professionals in a variety of ways. To see what we are able to offer please visit our Education page.
Support for Employers
We provide support to employers wanting to diversify their team! For more information on what support we provide please visit our Employment Page.