Health Toolkit

Resources have also been developed for people with Down syndrome and their families to be prepared and informed about hospital stays, building relationships with GPs and decision making.
Health Toolkit thumbnail.

Access to appropriate care within hospitals and the general health system can be difficult for people with Down syndrome. It is essential to ensure that everyone has access to good quality health care and is supported to access information and make informed health decisions.

Down Syndrome Australia has developed resources to provide evidenced-based advice to health professionals to better understand how to support people with Down syndrome within the health system.

Resources have also been developed for people with Down syndrome and their families to be prepared and informed about hospital stays, building relationships with GPs and decision making.

The resources developed by DSA include:

For people with Down syndrome and families 

DSA Health hospital stays
Fact sheet – Hospital stays
DSA Health find the right GP
Fact sheet – Finding the right General Practitioner
DSA Health about me
Health record – About me – PDF
DSA Health about me
Health record – About me – Word

For health professionals and the health setting 

DSA Health communication tips health professionals
Fact sheet – Communication tips for health professionals
DSA Health communicating postcard
Post card – Communication tips for health professionals
DSA tips for assessing children with Down syndrome poster
Poster – Tips for assessing children with Down syndrome

For everyone

Information sheet – Dental health and Down syndrome

Video – Health and Down syndrome

Other helpful resources

Health Inclusion Europe
Inclusion Europe – How to get easy to understand information about health care
Health Assessment for people with an intellectual disability Factsheet Final cover
Fact sheet – MBS item numbers
A GP’s and Allied Health Professional's guide to the NDIS
A GP’s and Allied Health Professional’s guide to the NDIS
Two people cooking
NSW Council for Intellectual Disability (NSWCID) – My Health Matters
Voice article – Doctors need to look beyond Down syndrome
Voice article – Doctors need to look beyond Down syndrome
Voice article – Resilience in hospital
Voice article – Resilience in hospital
Toddler kissing her mother outdoors
Just Checking have been produced by Family Planning NSW to raise awareness about breast screening, cervical and bowel screening for people with an intellectual disability.
A father giving his baby daughter a piggy back.
Harvard Medical School – online education – Down Syndrome: Health Care Updates for the Primary PaediatricianHarvard Medical School – online education – Down Syndrome: Health Care Updates for the Primary Paediatrician