Who we heard from
We shared such an incredible World Down Syndrome Day celebration at Parliament House Victoria on Thursday 19 March. In response to this year’s theme “Together against loneliness”, we reflected on why it is so important for people with Down syndrome to be part of a village: to feel connected, to feel a sense of belonging and to feel included. As our energetic MC and DSV employee Jack shared, “I feel less alone when there’s people around me who support me and love me and it’s making my life better.”
Supported by the Minister for Disability Lizzie Blandthorn, with Parliamentary Secretary for Disability Iwan Walters MP, members of parliament, our community, partners and supporters joined us for this auspicious occasion. Minister Blandthorn took us back to her childhood and shared a personal story about inclusion and belonging in her primary school, which again highlighted the importance of social inclusion and a sense of belonging to reduce loneliness.
Throughout the morning, we heard why it is so important for people with Down syndrome to be part of a village. To feel connected. To feel a sense of belonging. To feel included. These are the things that help reduce social isolation and help people thrive.
We were proud to showcase our FitSkills21 and Club21 programs that show what is possible when intentional spaces are created for connection, while also reminding us of the importance of continuing to build a society where belonging is part of everyday life for everyone. We acknowledge our staff who presented, as well as our guest speakers Meri, Monica and Eliza for sharing their stories. We were privileged to witness firsthand the friendship and connection they embody through their involvement in the Club21 Teens program.
The importance of organisations like DSV
Loneliness can affect anyone. Even in a crowded room, without meaningful connection, people can feel completely alone. For some people it isn’t an occasional feeling or experience, it is a persistent ache. For people with Down syndrome, loneliness and exclusion can shape everyday life, affecting health, wellbeing and confidence. Inclusive spaces are not a luxury, they are essential for full participation in life.
Our stories highlight what’s possible when government and community work well together – while also drawing attention to the very real challenges still facing people with Down syndrome, their families and our organisation.
As a community and society, we have made significant progress in some areas for people with Down syndrome, yet much work remains to eliminate the everyday barriers and challenges that persist. And so, the work continues for Down Syndrome Victoria, to provide whole of life services and supports for families and people with Down syndrome across the state.
We look forward to continuing this journey with you, to ensure all support systems are available for people with Down syndrome and their families to live the lives they choose – and deserve.
You can read more about the reflections of our Advisory Network on the WDSD theme, and other ways that you can find and build community through DSV.