Now and the Future Podcasts

The Now and the Future podcast is an exciting way of exploring stories, opportunities and current issues as shared by people with intellectual disabilities and their support networks.

Throughout this series, we will meet a range of people and provide practical advice to empower people with Intellectual Disability, now and into the future.

With new episodes released regularly, this podcast is essential listening for anyone with links to the Intellectual Disability community.

About this podcast series

Season Nine

Episode Five

Disability Action Week and International Day of People with a Disability

This year we celebrate Disability Action Week in Queensland from November 25th until December 3rd.

This week culminates on International Day of People with Disability which is held on December 2nd.

Each year in Disability Action Week the Queensland Government sets out a theme. This year’s theme is “access ignites: it’s good for business”.

This theme encourages employers to think about ways that they can increase their profits by recruiting and retaining staff with disability, but also by making their businesses more accessible to people with disability.

In this podcast we discuss how employing a person with an intellectual disability is good for business, and we hear from people with disability about their experiences working in their long term jobs

.If you wanted to listen to more podcasts about employment for people with intellectual disability, the Now and the Future Podcast have several that you can explore. You can explore our back catalogue to find those.

If you are an employer who is interested in employing a person with an intellectual disability, or if you just want to discuss how employing a person with an intellectual disability can be beneficial for your business, please get in touch with Down Syndrome Queensland to hear about how we can help you.

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Mentioned in this episode:

To find out more about volunteering, or to support the work of Down Syndrome Queensland, go to downsyndrome.org.au/qld

Bonus Episode

Men’s Mental Health Matters – Part 2

In part two of our compelling men’s health discussion, we continue our deep dive into the critical topic of men’s mental health.

Our esteemed guests, Darius Boyd, a former rugby league icon, and Michael Crutcher, former editor of the Courier Mail, continue to share their insights and experiences, shedding light on this crucial issue.

In this episode, we delve even deeper into the challenges and triumphs of men’s mental health. Darius and Michael bring forth their unique perspectives and stories, offering valuable advice and guidance on using the five pillars for mental wellness:

Support network
Empathy
Mindfulness
Exercise
Gratitude

‘Men’s Mental Health Matters’ is an ongoing dialogue that aims to inspire, empower, and create a positive change.

Tune in and be part of this important conversation, as we explore the path to better mental health.

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Mentioned in this episode:

To find out more about volunteering, or to support the work of Down Syndrome Queensland, go to downsyndrome.org.au/qld

Episode Four

Men’s Mental Health Matters – Part 1

In honour of International Mens Day on 19th November, we shed light on the often-overlooked aspect of men’s health – their mental wellbeing.

In this episode, we are joined by two incredible guests, former rugby league legend, Darius Boyd, and former editor of the Courier Mail, Michael Krutcher, to share their experiences and insights into the world of men’s mental health.

During this engaging conversation, we discuss the pressure of balancing life, career and family while also dealing with the expectations and criticisms of everyone around you.

Darius Boyd opens up about his personal journey about dealing with his own challenges while being in the public eye, and having the added expectations and criticisms of those around you.

Michael Krutcher provides valuable advice on navigating the complexities of mental health and the importance of a support network.

‘Men’s Mental Health Matters’ is a powerful conversation about understanding yourself, identifying the support around you and learning to balance all of the expectations around fatherhood. Tune in and be part of the conversation that’s changing lives.

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Mentioned in this episode:

To find out more about volunteering, or to support the work of Down Syndrome Queensland, go to downsyndrome.org.au/qld

Episode Three

Every Cent Counts: The Story of 10 Cent Tom

As part of National Recycling Week, our host Michael Harrison, Community Engagement and Fundraising manager, sits down with the Gold Coast’s very own recycling sensation Tom Pirie and his amazing mother Carolyn, to speak about their experience in creating ‘10 Cent Tom’.

Tom is an upcoming entrepreneur with an Intellectual Impairment who’s created a name for himself as “10-Cent Tom” with his recycling business on the Gold Coast, where he helps the environment by turning recyclables into 10 cents at a time.

This episode highlights Tom’s journey as well as the unwavering support of his mother, Carolyn, as she shares her insights into supporting individuals with intellectual disabilities from a parent’s perspective and provides guidance on the exciting journey beyond school.

You can follow Tom on Facebook and Instagram, or visit his website to find out how you can get involved at https://www.10centtom.com.au/

If you need support in thinking about what’s next for you or your loved one, contact our team at Down Syndrome Queensland today!

Phone: 07 3356 6655 Email: office@downsyndromeqld.org.au

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Two

Supports for Carers

Caring for a person with an intellectual disability is an important and fulfilling role, but is also a role that can leave carers feeling isolated and alone.

The struggles that a carer encounters can be quite unique to their caring role and carer burnout is an all too common experience for people who devote their lives to ensuring their loved one has a life that is perfect for them.

The podcast today discusses the important role that carers play, some of the warning signs associated with carer burnout and looks at some of the supports that carers can access in Queensland.

Some of the supports we discuss in the podcast are:

Carers Queensland Supports
Carer Gateway
Little Dreamers
Siblings Australia
MyTIme
ARAFMI Queensland

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode One

World Teacher Day

The theme this year is ‘hats off to teachers’, celebrating Australia’s teachers for their skilled work in educating, inspiring and supporting our students.

This episode features a discussion amongst DSQ’s Education Team; Carly Lassig, Denise Maindonald, Elisha Byrne and Kath Bunney who share a little about themselves as teachers, and what they love about supporting educators who are teaching students with Down syndrome and other intellectual disabilities in our kindergartens and schools.

More information about the Education Team’s services. (many of which are FREE!) can be found at the Education Services page on the Down Syndrome Queensland website, or by emailing education@downsyndromeqld.org.au

DSQ’s Education Services are proudly supported by the Queensland Government.

Season Eight

Episode Five

Looking After You

In this thought-provoking episode, Donna Thistlethwaite from Mentally Wellthy delves into women’s mental health, highlighting the importance of recognising the signs of mental decline. She provides listeners with valuable insights into identifying early symptoms and addressing them in a proactive manner. Ms Thistlethwait’s empathetic and informative approach helps break down stigmas surrounding mental health, encouraging open conversations about seeking help and support.

Mental wellness advocate, Donna Thistlethwait, is an expert in the field of mental health and brings a wealth of knowledge and experience to the episode. Ms Thistlethwaite has lived experienced with mental health challenges and, following an attempt to end her life by jumping from Brisbane’s Story Bridge in 2012, she now dedicates herself to empowering others through speaking out and training people about the importance of resilience and mental wellness.

If you or someone you know is need of support, Lifeline has a 24/7 phone service to help you – you can call them now on 13 11 14.

Episode Four

Father’s Day

Celebrating Father’s Day with a special podcast episode dedicated to all the incredible dads out there! Tune in as we share heartwarming stories, valuable life lessons, and a whole lot of love. From the things we love most about our dads to our proudest moments, this episode is a tribute to the father figures who make a difference in our lives. Happy Father’s Day!

Episode Three

Employment Programs

Hear from Toula Georges, Programs Project Coordinator, about DSQ’s groundbreaking Employment Connections project which aims and benefits for employers, employees, and families.

Join Kirrin and Eoin, Employment Ambassadors, as they share how employment empowered their lives. Don’t miss the heartfelt perspective of proud parents Leanne and Ivan, celebrating their child’s newfound independence.

In this episode, you’ll discover more about the Employment Connections project, fostering open employment opportunities for individuals with intellectual disabilities and promoting inclusivity in businesses.

Episode Two

Kindy Program

Children with disabilities have the same rights as other children to access and participate in the Kindy program as their same aged peers.

Sometimes adjustments to the program, environment or your teaching style are required to enable this to happen.

This educational podcast assists Kindy teachers to plan, document and gain confidence when making adjustments to include a child with a disability in their kindergarten program.

This Now and the Future podcast is proudly supported by the Queensland Government.

Episode One

Travel Training

Down Syndrome Queensland is offering a Travel Training Program to all individuals with an Intellectual disability who are aiming to travel independently.

The program involves the traveler and the travel coach working through the travel training handbook to build skills and tools to navigate a journey.

The aim is for the traveller to navigate and go on a route independently which will provide them with the flexibility to go where they want, when they want.

In this episode we hear from Programs Project Coordinator, Toula Georges about the Travel Training program, and the great impact it has on people’s lives and independence.

We will also hear from a Travel Trainer, Eoin Gibson, and on the reasons why this program benefits your independence greatly.

For more information on DSQ’s Travel Training project and Employment projects and how you can become involved, please contact Toula Georges on (07) 3356 6655 or email

Season Seven

Episode Five

Down Syndrome Regression Disorder in Young People With Down Syndrome

Down Syndrome Regression Disorder (DSRD) is a condition that affects young people with Down syndrome and is characterised by an unexpected and severe regression in speech and functional ability. Additional features such as extreme and disabling slowness can also occur.

Causes for this are often unclear and very upsetting. In this podcast, we are joined by Dr Cathy Franklin from the Mater Intellectual Disability and Autism Service who is leading research into this condition.

Dr Franklin will talk to us about what we have learnt so far about DSRD.

Please note, this podcast is a condensed version of a webinar that we ran in March 2023 on the topic of Down Syndrome Regression Disorder in young people with Down syndrome.

Episode Four

Navigating Puberty With a Person With an Intellectual Disability

This podcast comes with a little ears warning. In this podcast, we will be discussing themes around puberty and will be using language that may not be appropriate for little ears. If you have a little person listening with you, we would suggest listening to this podcast in private.

On today’s episode of the Now and the Future Podcast, we chat with Ee-Lin from Planet Puberty to discuss puberty for people with an intellectual disability. Puberty can be a confusing time for young people as well as parents. Changes to bodies and hormones can lead to behaviours and feelings that are foreign and a bit scary. It is important to maintain an open and honest dialogue about what is happening, but that can be a bit trickier when your young person also has an intellectual disability. Ee-Lin chats openly about strategies and resources that are available to help make this transition into young adulthood.

If you wanted to explore the resources discussed in the webinar, head to the Planet Puberty website which you can find at the following link – www.planetpuberty.org.au

Episode Three

Challenge Weekend

DSQ Challenge Weekends are a personal development weekend for people with Down syndrome and other intellectual disabilities aged 12 and over. Participants are allocated into small groups captained by a volunteer team leader who provides peer support for the duration of the weekend. The aim is for ‘Challengers’ to try new things and be pushed outside their comfort zones in a safe, supportive and encouraging environment.

In this episode, we hear from Programs Manager, Teagan Cossor for an overview of the camp and what they aim to achieve in our community. We will also hear from Social Programs Coordinator, Piper Ferguson, and some past participants on the benefits of these programs, why there is such a need for these camps and why they choose to participate.

For more information on DSQ’s Programs and how you can become involved, please contact Teagan Cossor on (07) 3356 6655 or email tcossor@downsyndromeqld.org.au

Episode Two

Mother’s Day

On this very special takeover episode of the Now And The Future podcast, some of our wonderful members with Down syndrome interview their mums about what it’s like to be their parent.

If you wanted to watch more heartfelt content about parenting a child with Down syndrome, you can find some links below:

Episode One

Get Active!

In this episode Down Syndrome Queensland’s Peer leader, Luka has a chat with Get Active Coordinator Kim Lawley to discuss the Get Active program.

Kim also chats about the new “Welcome to Coaching People with Down syndrome” course, as part of a suite of online learning opportunities with Special Olympics Australia’s, Inclusive Sport Academy.

Find out more about inclusion through sport and recreation at the Get Active website.

Season Six

Episode Five

A Coffee with DSQ’s CEO

In today’s episode of the Now and the Future podcast, Michael Harrison sits down for a DSQ Brew with Down Syndrome Queensland’s new CEO Chris McMillan.

In this discussion we learn more about Chris, have some fun and find out her vision for Down Syndrome Queensland. Chris has a long history with support services and has worked with organisations such as Cancer Council QLD, The Leukaemia Foundation, Ozcare and Variety.

Episode Four

MyTime

MyTime is a free peer support group for parents and unpaid carers of children under 18 with disability and/or complex needs. MyTime lets you connect with others who understand, build your support network, find out what services are available locally and have some time for yourself. MyTime groups meet fortnightly throughout school terms and a player helper can be available for preschool-aged children to help you have time to connect with others. MyTime runs nationally; to find a group near you click here.

You can also connect with Naomie, DSQ’s My Time Coordinator, by calling the DSQ office on (07) 3356 6655.

Episode Three

Perspectives on the Parent Education Conference 2023

Today we’ll be hearing a range of perspectives on, and information about, DSQ’s upcoming Parent Education Conference. The conference is held bi-annually and for the first time ever, this year the parent stream of the conference will be held separately from the Teacher’s conference.

QDSAN members Michael Cox and Claire Mitchell dive deep into what is on offer at the conference; and in the second half of the episode, we hear from two parents who attended the 2021 conference as they reflect upon what they gained from it and how it has supported their children’s subsequent transition to school. The conference will be held in person at DSQ’s Ascot office (77 Kitchener Rd, Ascot) on Tuesday, 14th March from 9.00am–2.00pm. It will also be recorded so that those who can’t attend in person can still benefit.

Episode Two

Inclusive Leadership

People with Down syndrome have the right to work just like any other person.

In the lead-up to Down Syndrome Queensland’s biennial Endless Possibilities Education Conference for educators, to be held on March 3rd in Brisbane, this podcast episode provides a sneak preview with one of our conference presenters: Deb Dunstone, CEO of The Learner First (and former Assistant Director-General for Disability and Inclusion in the Queensland Department of Education).

In this episode, Lead Education Consultant Carly Lassig interviews Deb about leadership for inclusive education and the next steps for schools in transforming inclusive education policy into practice.

For more information and to register for the Endless Possibilities Conference go to: https://www.downsyndrome.org.au/blog/event/endless-possibilities-conference-2023/

Episode One

Exploring Employment

People with Down syndrome have the right to work just like any other person.

As parents and carers however, it is natural to have worries about our young person entering the workforce. In this episode of the Now and the Future podcast, DSQ’s Support Service Officers discuss some of the common questions that they get asked by parents and carers when their young people start looking for work.

If you would like to find more resources and information about this topic the Down Syndrome Australia Right to Work website is a great place to start: https://www.downsyndrome.org.au/right-to-work/

The Everyone Can Work website is another wonderful resource to explore: https://www.everyonecanwork.org.au/thinking-about-work/the-role-of-families/

The resource, A Guide for Employees, is a tool to guide your exploration process: https://www.downsyndrome.org.au/right-to-work/what-job-do-you-want/

An example video resume can be found here: https://www.downsyndrome.org.au/right-to-work/right-to-work-videos/

The Field is a job search website for people with disability: https://www.thefield.jobs/Job/

Season Five

Episode Five

Education FAQ’s with the Support Services Team

As one school year ends and we prepare for a new one, join DSQ’s Support Services Team as they discuss the frequently asked questions received from families throughout 2022 in relation to education.

The United Nations Convention on the Rights of persons with Disabilities (UNCRPD) provides for the inclusion of students with disabilities in accessing education on an equal basis: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-24-education.html

Australia’s Disability Discrimination Act 1992 supports the implementation of Australia’s international human rights obligations under the Convention on the Rights of Persons with Disabilities. In relation to education, this covers enrolling or studying in a course at a government or non-government school, or a public or private college, registered training provider, or university – though there are some exceptions. You can read more at the following links:
https://www.education.gov.au/swd/resources/f7act-sheet-1-disability-discrimination-act-1992
https://www.education.gov.au/disability-standards-education-2005/students/english

The Disability Standards for Education 2005 explains two things: the rights of students with disability; and what education providers have to do to help students with disability to access their rights. The Standards also further explain the exceptions to these rights being accessed. These standards cover schools and preschools, as well as higher education facilities. They do not currently cover childcare facilities or outside school hours care providers.

For a comprehensive breakdown of inclusive education in Queensland schools (public, private or independent), the booklet below is an excellent read: https://cru.org.au/wp-content/uploads/2017/02/QPPD-I-choose-Inclusion-Booklet.pdf

You can also read more about the Queensland Department of Education’s inclusive education policy here: https://education.qld.gov.au/students/students-with-disability

Community Resource Unit (CRU) is a great community organization that has a range of training and resources related to inclusive education: https://cru.org.au/our-work/inclusive-education/resources/

The Queensland Collective for Inclusive Education is a parent / peer led group working to ensure all students across Queensland are included in their chosen education settings: https://www.qcie.org/

Episode Four

Inclusive Educational Adjustements to Support Students with Down syndrome

Whilst every student with Down syndrome is an individual with their own strengths and weaknesses, there are often common physical attributes that need to be taken into consideration when planning for educational adjustments.

As part of the educational team, we consult with many schools across the state and walk alongside educators to ensure they understand the diagnosis as best they can, as well as know their students to cater for their individual support needs.

This podcast takes listeners through the top five considerations we face in our consultations and gives advice on ways to best support students in the most inclusive pedagogical methods.

This Now and the Future podcast is proudly supported by the Queensland Government.

Episode Three

Down Syndrome Queensland’s Wellness Fair

As part of Down Syndrome Awareness Month in October, Down Syndrome Queensland hosted a Wellness Fair at Ascot Park, just behind DSQ’s Ascot office. The Wellness Fair was a fantastic afternoon, that saw the Down syndrome and wider community join together to celebrate diversity and inclusion, and highlight the role that people with Down syndrome play in the community.

DSQ’s Michael Harrison brings us all the action from the afternoon in this special edition of the Now and the Future Podcast.This podcast is a production of Down Syndrome Queensland. If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

Episode Two

Early Childhood Approach

The Early Childhood Approach is the part of the National Disability Insurance Scheme that is specifically for children aged 0–6 years who meet the eligibility requirements. The early childhood approach was developed based on evidence based research with the help of leading experts in early childhood intervention.

The approach supports best practice in early childhood intervention because it helps the child and family to build their capacity and supports greater inclusion in community and every day settings, meaning each child will be provided with opportunities to grow and learn.

It is about giving children and their families the right supports to enable them to have the best possible start in life. In today’s episode, we hear from Daisy Prasad (Senior Physiotherapist) and Kelly Raedler (Team Leader), who work for The Benevolent Society, and are the Early Childhood Partners for the NDIS across the Brisbane, Moreton Bay and Logan regions. In this episode the following links were discussed as helpful sites for parents to seek more guidance around determining what can be funded using NDIS funds; and also for more general information about services and supports available through the Early Childhood Approach.

Episode One

Tri 21 Series

In today’s episode of the Now and the Future podcast we hear about one of Down Syndrome Queensland’s largest fundraisers, the Tri 21 Series.

Now in its 11th year, this annual sporting event involving indoor cricket, netball and volleyball raises funds and awareness for Down syndrome within the community.

Join us today as we hear from the people involved in the 2021 Tri 21 Series and the impact this event has in the community. This podcast is a production of Down Syndrome Queensland.

Season Four

Episode Five

Relationships

On this episode of the Now and the Future Podcast, Queensland Down Syndrome Advocacy Network member Olivia takes over the podcast.

She speaks to Down Syndrome Queensland support services staff Isabel and Yuka about relationships to start a conversation about this important topic. This is a takeover episode of the podcast designed for people with Down syndrome. Olivia asks questions such as what is a relationship? Why are relationships important and how do I start a romantic relationship?

These are all important topics that Yuka and Isabel answer drawing upon some of their own experiences. Relationships are an important part of being human. They give us companionship, connection and allow us to feel love and be loved, all important experiences that shape who we are as people.

People with intellectual disability have a right to experience all different types of relationships including romantic relationships.

Episode Four

Prenatal Screening

Down Syndrome Queensland understands that access to prenatal screening and diagnosis is important for many families. We respect the right of women to undertake prenatal testing, if they choose to do so, and to make decisions about whether or not to continue a pregnancy based on their own circumstances and beliefs.

Research suggests that currently, many families may not be making fully informed choices about prenatal testing. We are concerned that some families may be making decisions that are based on negative community attitudes and inaccurate, outdated information about Down syndrome.

Non-invasive prenatal screening marketing material often focuses on the relief and reassurance that prenatal screening can offer, but there is very little out there about the 2–3% of unexpected results that might raise more questions than answers. There may be misinformation, or worse still, silence, about screened-for conditions. For more and more prospective parents this isn’t a hypothetical question, as technologies such as non-invasive prenatal screening become more widely used.

Through our work supporting families through prenatal screening and diagnosis, we often hear stories of misinformation about life with Down syndrome and an assumption that following a diagnosis, prospective parents would choose termination. We also hear stories of choices not being supported or respected; and frequently, families have to stumble upon support services themselves rather than being referred to them as part of ongoing care during the remainder of their pregnancies.

Down Syndrome Queensland, in partnership with the Department of Health, has been funded to deliver a project which will improve the training and education available to healthcare professionals, to enable access to accurate and balanced information at the time patients are considering prenatal screening. This much-needed project supports health care professionals offering pre-natal care and navigating prenatal screening technology.

It’s an area that can be divisive; it can be hard to talk about and difficult to think about. While pre-natal screening technology can give us a chromosome count, when prospective parents ask ‘what does that mean for my child?’ often the answer is far less clear.

This project brings together critical clinical knowledge with the lived experiences of people with chromosomal conditions such as Down syndrome. Prospective parents making decisions about the future of a wanted pregnancy need accurate and balanced information, the right support and time; it’s hard to imagine a more high stakes scenario. In this episode, we will hear from a number of people with lived and professional experience in the area of prenatal screening.

From today, prospective parents and healthcare professionals can now access up to date, evidence-based and balanced information on one reputable website. This site brings together a range of written resources and videos, along with clinical training options, so that the prenatal screening journey can be one that is informed, supported and respectful of patient experiences and choices.

Visit the Prenatal Screening website for all the information: https://prenatalscreening.org.au/

This podcast is a production of Down Syndrome Queensland. If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

Episode Three

Latch On

Latch On is delivered by Down Syndrome Queensland and aims to change the lives of young adults with intellectual disabilities, through its evidence-based literacy program.

This two-year program is developed by the University of Queensland and delivered by DSQ to provide students opportunities to increase their literacy and communication skills.

In this episode, we will hear from Dr Anne Jobling, who led the research into and the development of Latch On when it was first created and is still part of the program through the University of Queensland. We also hear from Latch On teacher, Janet Reed who talks to us about the Toowoomba Latch On class and gives us an idea of what a normal day at Latch On looks like. We will also hear from current student sand how they are benefiting from the program.

For more information on DSQ’s Programs and how you can become involved, please contact Teagan on (07) 3356 6655 or email tcossor@downsyndromeqld.org.au

Episode Two

Mosaic Down Syndrome

Around 1–2 % of people with Down syndrome have mosaic Down syndrome, which means only around 120–240 people in Australia live with this rare type of Down syndrome.

Mosaicism occurs when a person has two or more genetically different sets of cells in their body. People with the more common form of Down syndrome, Trisomy 21, have 3 copies of the additional 21st chromosome in each cell.

However, people with mosaic Down syndrome have some cells with an additional 21st chromosome, while other cells have two copies rather than three. Mosaicism occurs when the chromosomal variation occurs after fertilization. As with Trisomy 21, people with mosaic Down syndrome are all unique individuals with a range of strengths and interests. Some though not all people with mosaic Down syndrome have fewer of the physical features that can be associated with Down syndrome, but most children will experience delays in meeting developmental milestones.

Whilst some people with mosaic Down syndrome may experience less of the developmental and physical impacts of Trisomy 21, other people with mosaic Down syndrome will experience many of these. The degree of impact will depend upon a range of other factors, including the level of mosaicism.

In this episode, we will hear from a range of people about mosaic Down syndrome, including a person with the condition, and a couple of parents who discuss their journey to diagnosis. Click on the links for further information: https://www.imdsa.org/ (International Mosaic Down Syndrome Association)

Episode One

Common Barriers to Inclusion

What are the barriers to inclusion? What barriers do students face, as well as educators? Which barriers are due to mindset and classroom culture, leadership and pedagogy, or other environmental factors? Are barriers something that can be overcome or do some barriers need to be accepted and just worked with?

These are the sorts of questions that the DSQ Education Team delve into and explore, as they tackle the tricky theme of barriers to inclusion in a classroom.

This podcast attempts to provoke thought, professional dialogue and pedagogical reflection, as each barrier is unpacked and discussed by our team.

This Now and the Future podcast is proudly supported by the Queensland Government. If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

Season Three

Episode Five

Disability Royal Commission

In this episode of the Now and the Future Podcast we sit down with Rikki and Linda from the Disability Royal Commission Advocacy team at Speaking Up For You (SUFY).

We’ll discuss their role in the Disability Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability.

We will learn about the Disability Royal Commission, how SUFY works to help you make a submission, what form your submission can take and what you should think about before you make a submission.

If you would like to know more about the Disability Royal Commission you can visit their website.

If you would prefer an easy read resource to learn about the Disability Royal Commission, you can find one here.

If you think you would like to make a private submission to the Disability Royal Commission, you will need to request a private session by the 30th of June 2022. You can do this here or by calling 1800 517 199.

You will need to register by this date even if you think you might change your mind later which is completely OK.

If you would like to make a submission to the Disability Royal Commission you will need to do this by the 31st of December 2022.

You can find out more about this by clicking this link.

If you would like SUFY to help you make a submission to the Disability Royal Commission, or if you would like information on who can help you make a submission, please contact them on (07) 3255 1244 or by email on sufy@sufy.org.au

Alternatively, you can also visit the SUFY website

This podcast is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Four

In Conversation With Education Consultants

School inclusion is not simply placing a student with a disability into a mainstream class and hoping for the best.

It is an approach, a belief, and a human right for all students with Down syndrome to be included in their local school, and requires thoughtful considerations, adjustments and support for success.

In this episode, listen to our Down Syndrome Queensland Education Consulting Team as they share their experiences about how they became involved in inclusive education, how inclusion is beneficial for all students, and the benefits for educators involved within inclusive schools.

This Now and the Future podcast is proudly supported by the Queensland Government.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Three

Get Active: Coaching Tips & Programs

Get Active is a program offered by Down Syndrome Queensland to help community sporting clubs and coaches enhance their capabilities to provide inclusive sporting and recreational opportunities for people with Down syndrome and other intellectual disability.

The Get Active program is funded by the Australian Government through the Driving Social Inclusion through Sport and Physical Activity Grant Program.

Get Active is formed on its pillars of success: Education, Resources, Advocacy, Social and Community Connections.

We are here to raise awareness and provide opportunities for all.

We have teamed up with an incredible program called Unified Sports and today we have Kym Lawley with us to explain exactly what this is and how your son or daughter, friend, cousin or neighbour can get involved.

In this episode we hear from Programs Coordinator, Liz Willis and State Sporting Manager from Special Olympics Australia Kim Lawley, to discuss the exciting unified basketball competitions being offered in Queensland.

Then we welcome two more of our Ambassadors Martin Smith and Tim Gould for some coaching tips and insights into their Get Active Ambassador lives and let them share with us their messages for inclusion and coaching people with Down syndrome.

For more information on DSQ’s Programs and how you can become involved, please contact Liz on (07) 3356 6655 or email getactive@downsyndromeqld.org.a

Now And The Future is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Two

Siblings

This episode showcases the bond between, and unique perspectives regarding, having a sibling with Down syndrome.

We will discuss what this role has brought to the lives of the two siblings interviewed, Bekki and Laurel.

You can read more about the sibling experience in the April 2021 issue of Down Syndrome Australia’s Voice magazine.

Other helpful resources include:

Siblings Australia is an organisation committed to promoting better support for siblings of children and adults with disability. You can find out more at the Siblings Australia website.

It was founded by Kate Strohm, author of the book ‘Siblings’, which can be borrowed from DSQ’s library.

In the ‘Our Stories’ section of the Down Syndrome Australia website, you can read about other families’ experiences when supporting their children to understand more about their brother or sister’s diagnosis.

Read the story about Owen and his sisters here.

The support services team at DSQ can assist with recommendations of a range of books to help siblings to understand more about Down syndrome.

In addition, the team are happy to discuss any questions you may have about family dynamics; and we are here to listen to and support siblings of all ages to adjust and understand.

Now And The Future is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode One

Co-Occurring Diagnoses

Welcome to Season 3 of the Now and the Future Podcast brought to you by Down Syndrome Queensland!

Whilst it is commonly known that people with Down syndrome can be more likely to experience a range of possible health conditions, sometimes other non-medical diagnoses are subsequently made.

Research is now suggesting that people with Down syndrome can meet diagnostic criteria for conditions such as Autism Spectrum Disorder, and Attention Deficit Hyperactivity Disorder, at higher rates than seen in people without Down syndrome.

In the past, this has commonly been referred to as ‘dual diagnosis’, however this term is no longer used as it can imply different meanings in other fields. The terms ‘co-occurring’ or‘ additional’ diagnosis are now preferred, and paired with the relevant condition e.g. Down syndrome and Autism Spectrum Disorder (DS + ASD); Down syndrome and Attention Deficit Hyperactivity Disorder (DS + ADHD).

This episode will feature conversations with several parents whose children have subsequently received additional diagnoses.

They explore what this has meant for their families and how it flows on to other settings, such as school or in the community.

DSQ has previously recorded two webinars on the topic of Down syndrome + ASD; you can view these at the following links:

View the webinar with Griffith University’s Autism Centre of Excellence (16.02.2021).

View the webinar with Dr Honey Huessler on navigating the diagnosis process (July 2021)

Down Syndrome Australia also has a fact sheet on Down syndrome and Autism which you can view here.

The DSMIG (Down Syndrome Medical Interest Group) DS-ASD Workgroup and partner Autism Speaks collaborated to create a new resource for Down syndrome-autism spectrum disorder (DS-ASD).

On the new DS-ASD page, you can read more about co-occurring Down syndrome and ASD, learn how autism presents differently in people with Down syndrome and access resources to further your education on this diagnosis.

Now And The Future is a production of Down Syndrome Queensland.

If you have a question, would like more information on any of our episodes, or have suggestions for future topics, send us an email – engagement@downsyndrome.qld.org.au.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Season Two

Episode Five

Diving Into Diet and Nutrition

In this episode of Now and the Future Podcast, we will be exploring the importance of nutrition for those who experience co-occurring health conditions or allergies.

The role and importance of nutrition will look different across the lifespan; from those difficulties with establishing newborn feeding through to the impact of conditions in adulthood such as diabetes or thyroid concerns, it is vital to ensure that any person with Down syndrome has their nutrition needs reviewed regularly.

We’ll be chatting with Matt Hart, Accredited Practicing Dietitian and Sports Dietitian, and founder of Hart Nutrition; and DSQ’s Community Engagement Officer, Gillian Gehrke, around her lived experience of the way in which Mosaic Down syndrome has impacted her in this area.

If you’re interested in connecting with Matt following this episode, feel free to contact him on 0400 961 870 or via email matt@hartnutrition.com.au

Now And The Future is a production of Down Syndrome Queensland.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Four

Health Ambassadors

This week the Now and the Future podcast talks about Health Ambassadors and their mission to make health care workers better understand people with Down syndrome.

Now And The Future is a production of Down Syndrome Queensland.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Three

Wills and Estates

This week the Now and the Future podcast talks about Wills and Estates with Dion McCurdy, Principal of Direct Lawyers.

With over eight years of experience specialising in Wills and Estates, Dion provides fantastic insight and advice to ensure your affairs are in the correct order for the future.

A not to be missed episode for anyone with a child with an intellectual disability.

Now And The Future is a production of Down Syndrome Queensland.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode Two

Social Programs

In this episode of the ‘Now and the Future’ Podcast, we talk to Teagan from Down Syndrome Queensland about the range of Social Programs offered for adults, teenagers and children to develop social skills and make new friends.

You may have heard about DSQ Club, DSQ Teens, DSQ Kids, Challenge Weekend or DSQ’s New Years Eve Ball; this episode is all about these programs.

Why they are important, who they are aimed at and some of the outcomes for regular participants.

We hear from Eoin and Kirrin about their experiences and also a parent who explains the personal growth she has seen in her daughter from participating in the programs.

For more information on DSQ’s Programs and how you can become involved, please contact Teagan on (07) 3356 6655 or email seniorcoord@downsyndromeqld.org.au

Now And The Future is a production of Down Syndrome Queensland.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Episode One

Calling all carers!

Identifying as a carer is not always something that comes naturally to families who support a loved one with a disability.

The line between what we see as the role of family and what are added or unique responsibilities when a family member has a disability can be very fluid and can also change over time.

In this episode, we unpack this further with Kirsten and Claire from Carers Queensland and explore the various options for support, including for siblings and young carers.

If you would like to contact Kirsten or Claire for more information or support, please call 1300 747 636 or head to the Carers Queensland website.

Now And The Future is a production of Down Syndrome Queensland.

For more information please visit the DSQ website, or follow us on Facebook and Instagram.

Season One

Episode Five

Capacity Building in the Classroom

In the final episode for Season 1 of the ‘Now and the Future’ Podcast, we talk to teachers and students from two of Down Syndrome Queensland’s (DSQ) programs, Latch-On and Continued Education Program (CEP), and how these holistic education programs which include components of real-world experience, develop confidence, independence and employment opportunities.

Episode Four

4 Things to Know When Teaching a Student with Down Syndrome

Join DSQ Education Consultant Joelle as she shares some points to consider when a student with Down syndrome enrolls in school. Learn about equitable loading, risk-taking and mistake-making, breaking down stereotypes and development progression. Joelle aims to provide educators with some basic understanding about students with Down syndrome to support schools to become inclusive learning environments.

This Now and the Future podcast is proudly supported by the Queensland Government.

Episode Three

Safeguarding and Setting Boundaries

Statistically, people with a disability can be more vulnerable to abuse; and this can be very confronting to process. However, there are strategies that can be used when assisting others to learn about respectful relationships and maintaining boundaries. Join DSQ’s Support Services team, and Peer Leader Niky, to hear about starting the conversation early with regards to teaching about safeguarding and setting boundaries.

Episode Two

Peer Support

The Peer Support Network is a volunteer program facilitated by Down Syndrome Queensland (DSQ). Peer Supporters are parents and close family members of people with Down syndrome, as well as people with Down syndrome, across Queensland who want to offer support in their local community.

This program is expanding and gaining momentum. Peer support as a model is growing in popularity across many sectors and areas, as a valuable intervention. Peers can offer unique and useful support by virtue of having lived experience.

In this episode, DSQ’s Peer Support Officer Christina Ranck chats with Early Years Officer Tanya McConnell about the value of the Peer Support Network and what it is providing DSQ members across the state. We also hear from a range of Peer Supporters about what they get out of this role, and what they have been able to contribute to the community.

DSQ’s Peer Support program is funded by the Department of Social Security’s Information, Linkages and Capacity Building Program. For further information please contact the Peer Support Officer on (07) 3356 6655 or email peersupport@downsyndromeqld.org.au

Episode One

Get Active

Get Active is a Social inclusion program and accompanying resource kit, offered by Down Syndrome Queensland to sporting communities across the state. The program educates local sport and physical activity providers (clubs, coaches and volunteers) to increase their capability to deliver accessible, inclusive programs that meet the needs of people with Down syndrome and other intellectual disabilities.

In this episode, we hear from Get Active’s Program Coordinator, Liz Willis, about what the program aims to achieve and how it can support clubs, coaches and families to improve sporting participation rates in local areas. The episode also features Get Active Athlete Ambassador Ethan Parry, and Get Active Coach Ambassador Stix (Daniel) McGavin, as they encourage and inspire others to aim for inclusion. Ethan’s mother, Gail Parry, also shares her perspective on Ethan’s athletics pursuits.

GetActive is funded by the Federal Department of Health under the Driving Social Inclusion through Sport and Physical Activity Program. If you would like to learn more about Get Active, or contact Liz for assistance, head to https://getactive.net.au/

See all episodes