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(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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Special Larapinta offer!

Join Down Syndrome Victoria in the Red Centre for the ultimate Australian challenge, trekking the iconic Larapinta trail. By taking part, you’ll help DSV to support people with Down syndrome in Victoria. Use the code DSVONE to receive the $390 registration fee for just $1!

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Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

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Services and Supports

Our work and strategic plan

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Annual Reports
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Policies and Procedures
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Strategic Plan 2024-2026
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Diversity & Inclusion Action Plan
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Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

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Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

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We help people with Down syndrome and families with support, information and resources.

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We have support services for people with Down syndrome and families, at all stages of life.

Our Services

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Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

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We also advocate for people with Down syndrome and their families.

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This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

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You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

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Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

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Join us on Monday 16 June for an online MyTime workshop to discover the resources and supports Continence Health Australia offers to help parents and children with toileting skills, from toddlers to older children.

This session is for MyTime and DSV families with children struggling with continence challenges including families:🧻 preparing to start toilet training🧻 struggling with toilet training🧻 with children with ongoing continence issues.Come along to find out more and help us learn what you need.Continence Health Australia is the lead body promoting bladder and bowel control health in Australia.Find out more and register at https://downsyndrome.org.au/blog/event/…ID: A toddler sitting on a potty. We can only see them from the chest down and they have their hands resting on their feet. There is a small teddy bear sitting on a mini-potty next to them. ... See MoreSee Less

17 hours ago
Join us on Monday 16 June for an online MyTime workshop to discover the resources and supports Continence Health Australia offers to help parents and children with toileting skills, from toddlers to older children. This session is for MyTime and DSV families with children struggling with continence challenges including families: 🧻 preparing to start toilet training 🧻 struggling with toilet training 🧻 with children with ongoing continence issues. Come along to find out more and help us learn what you need. Continence Health Australia is the lead body promoting bladder and bowel control health in Australia. Find out more and register at https://www.downsyndrome.org.au/blog/event/continence-resources-for-carers/ ID: A toddler sitting on a potty. We can only see them from the chest down and they have their hands resting on their feet. There is a small teddy bear sitting on a mini-potty next to them.

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We are hiring! DSV is looking for a Program Manager to lead and develop our FitSkills21 program.

This position is suited to someone with qualifications and experience in delivering programs for adults with intellectual disability in a community setting. This position is part-time and a hybrid role (work from home and also on-site, with some travel around Victoria).FitSkills21 is an evidence-based, physical activity program designed for individuals with Down syndrome. Participants attend weekly facilitated 1-hour workouts at the gym with a volunteer partner, followed by a social meal. The program is tailored by a physiotherapist. FitSkills21 aims to enhance fitness and well-being through a supportive and inclusive approach.The FitSkills21 program is currently delivered at 9 Victorian gyms, including metro and regional locations. This program is an NDIS-funded activity and is in its first year of delivery.If you would like to read more about the role or apply, visit https://seek.com.au/job/84395005/…To find out more and to view the position description, please contact Karen Peters, Services Manager, at karenp@dsav.asn.au. Applications close 12 June 2025.ID: Brad and Stella from FitSkills21 working out in a gym. ... See MoreSee Less

2 days ago
We are hiring! DSV is looking for a Program Manager to lead and develop our FitSkills21 program. This position is suited to someone with qualifications and experience in delivering programs for adults with intellectual disability in a community setting. This position is part-time and a hybrid role (work from home and also on-site, with some travel around Victoria). FitSkills21 is an evidence-based, physical activity program designed for individuals with Down syndrome. Participants attend weekly facilitated 1-hour workouts at the gym with a volunteer partner, followed by a social meal. The program is tailored by a physiotherapist. FitSkills21 aims to enhance fitness and well-being through a supportive and inclusive approach. The FitSkills21 program is currently delivered at 9 Victorian gyms, including metro and regional locations. This program is an NDIS-funded activity and is in its first year of delivery. If you would like to read more about the role or apply, visit https://www.seek.com.au/job/84395005?ref=hirer-jobs-list To find out more and to view the position description, please contact Karen Peters, Services Manager, at karenp@dsav.asn.au. Applications close 12 June 2025. ID: Brad and Stella from FitSkills21 working out in a gym.

3 CommentsComment on Facebook

Want to be part of a photoshoot with Down Syndrome Australia?

We’re helping Down Syndrome Australia organise a photoshoot with a professional photographer. It will be at our office in North Melbourne on Friday 27 June.We want to take real, everyday photos of people with Down syndrome. This includes things like work, health, friendships and independence.The photos will be used on social media, newsletters, the website and other places.We need at least 8 people with Down syndrome to take part. We want a mix of ages, genders and backgrounds. We especially want a few people aged 40 or older. Family members or support people might also be included in some photos.You’ll be asked to come for about 2 to 2.5 hours at a set time during the day. Please bring one or 2 changes of clothes. We will send you more details and a list of photos closer to the day.A light lunch, like sandwiches, will be provided.If you’re interested, please get in touch with Lucy Bain at lucyb@dsav.asn.au by Monday 9 June.ID: DSV's Keziah is holding her camera up. She is looking at the camera with a thoughtful look on her face. ... See MoreSee Less

2 days ago
Want to be part of a photoshoot with Down Syndrome Australia? We’re helping Down Syndrome Australia organise a photoshoot with a professional photographer. It will be at our office in North Melbourne on Friday 27 June. We want to take real, everyday photos of people with Down syndrome. This includes things like work, health, friendships and independence. The photos will be used on social media, newsletters, the website and other places. We need at least 8 people with Down syndrome to take part. We want a mix of ages, genders and backgrounds. We especially want a few people aged 40 or older. Family members or support people might also be included in some photos. You’ll be asked to come for about 2 to 2.5 hours at a set time during the day. Please bring one or 2 changes of clothes. We will send you more details and a list of photos closer to the day. A light lunch, like sandwiches, will be provided. If you’re interested, please get in touch with Lucy Bain at lucyb@dsav.asn.au by Monday 9 June. ID: DSVs Keziah is holding her camera up. She is looking at the camera with a thoughtful look on her face.

2 CommentsComment on Facebook

June is full of DSV events and helpful and informative workshops. Get cosy and choose an opportunity to connect with us!

🔸 Supporting language through key word sign, Wednesday 4 June🔸 Advocating for your child at school, Thursday 5 June🔸 New parent morning tea in Carlton, Friday 13 June🔸 Continence resources for carers, Monday 16 June🔸 Your child's transition to adult healthcare, Tuesday 17 June🔸 Introduction to the NDIS Early Years Approach, Tuesday 24 June🔸 Coffee and Chat 15+ years, Thursday 26 June🔸 Employing a trainer with intellectual disability for awareness training, Friday 27 JuneFor event details and registration, check out https://downsyndrome.org.au/vic/news-and-events/…ID: A woman with Down syndrome, laughing really hard, and words that read 'What's on this month at DSV'. ... See MoreSee Less

3 days ago
June is full of DSV events and helpful and informative workshops. Get cosy and choose an opportunity to connect with us! 🔸 Supporting language through key word sign, Wednesday 4 June 🔸 Advocating for your child at school, Thursday 5 June 🔸 New parent morning tea in Carlton, Friday 13 June 🔸 Continence resources for carers, Monday 16 June 🔸 Your childs transition to adult healthcare, Tuesday 17 June 🔸 Introduction to the NDIS Early Years Approach, Tuesday 24 June 🔸 Coffee and Chat 15+ years, Thursday 26 June 🔸 Employing a trainer with intellectual disability for awareness training, Friday 27 June For event details and registration, check out https://www.downsyndrome.org.au/vic/news-and-events/events/ ID: A woman with Down syndrome, laughing really hard, and words that read Whats on this month at DSV.

0 CommentsComment on Facebook

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

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