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(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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It's time to StepUP! for Down syndrome!

Let's get ready to StepUP! for Down syndrome. StepUP! for Down syndrome is held during Down Syndrome Awareness Month every October. It's a time for families, friends and our supporters to come together in celebration of people with Down syndrome.

Register now!

Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

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Services and Supports

Our work and strategic plan

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Annual Reports
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Financial Statements
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Policies and Procedures
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Strategic Plan 2024-2026
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Diversity & Inclusion Action Plan
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Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

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Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

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We help people with Down syndrome and families with support, information and resources.

Couple with a baby

We have support services for people with Down syndrome and families, at all stages of life.

Our Services

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Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

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We also advocate for people with Down syndrome and their families.

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This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

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You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

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Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

Get Social

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Do you know anyone who has been thinking of volunteering with DSV? We have an online information session on Tuesday 23 September to find out what is involved.

Learn how you can become part of a supportive and inspiring community. Whether you’re a student, professional, retiree or simply someone with some spare time to give, this evening will give you insight into the rewarding opportunities available to volunteer with us. Sessions are run by our Volunteer Coordinator and are co-hosted by an adult with Down syndrome.You will learn about:+ what Down syndrome is+ the work of Down Syndrome Victoria+ how you can get involved as a volunteer+ next steps.We really appreciate the commitment of time and energy of our volunteers. Volunteering is a way to connect with your local community, you can also learn new skills and grow your personal development.The session will be co-hosted by DSV's Emily Porter and Volunteer and HR Coordinator Johanne Zuleta.To find out more and register at ID: DSV's Matt and FitSkills21 volunteer David, posing and smiling in a selfie. Matt is doing a shaka sign with his hand, and there is an outdoor pool in the background behind them. ... See MoreSee Less

3 days ago
Do you know anyone who has been thinking of volunteering with DSV? We have an online information session on Tuesday 23 September to find out what is involved. Learn how you can become part of a supportive and inspiring community. Whether you’re a student, professional, retiree or simply someone with some spare time to give, this evening will give you insight into the rewarding opportunities available to volunteer with us. Sessions are run by our Volunteer Coordinator and are co-hosted by an adult with Down syndrome. You will learn about: + what Down syndrome is + the work of Down Syndrome Victoria + how you can get involved as a volunteer + next steps. We really appreciate the commitment of time and energy of our volunteers. Volunteering is a way to connect with your local community, you can also learn new skills and grow your personal development. The session will be co-hosted by DSVs Emily Porter and Volunteer and HR Coordinator Johanne Zuleta. To find out more and register at https://www.downsyndrome.org.au/sept-volunteering/ ID: DSVs Matt and FitSkills21 volunteer David, posing and smiling in a selfie. Matt is doing a shaka sign with his hand, and there is an outdoor pool in the background behind them.

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At MyTime, community is everything. Play Leader Grace creates spaces where children can laugh, learn and make friends, while parents and carers connect with others who truly understand their journey.

MyTime is a peer support program for parents and caregivers of children aged 0 to 18 years with a disability, developmental delay or chronic medical condition.This term, Grace’s groups are welcoming guest speakers, running creative activities, and finishing with a big park picnic. You can read more about Grace and the personal motivation that inspires her work at If you’ve been thinking about joining MyTime, now’s the perfect time. Come along for a cuppa, connection and a supportive village that’s here for you – we’d love to welcome you!Find out more about MyTime or the location of your closest group at www.downsyndrome.org.au/vic/…ID: A photo of Grace smiling at the camera. She has wavy brown shoulder-length hair and is wearing a top with swirls on it and a sporty jacket. ... See MoreSee Less

6 days ago
At MyTime, community is everything. Play Leader Grace creates spaces where children can laugh, learn and make friends, while parents and carers connect with others who truly understand their journey. MyTime is a peer support program for parents and caregivers of children aged 0 to 18 years with a disability, developmental delay or chronic medical condition. This term, Grace’s groups are welcoming guest speakers, running creative activities, and finishing with a big park picnic. You can read more about Grace and the personal motivation that inspires her work at www.downsyndrome.org.au/graces-mytime-journey/ If you’ve been thinking about joining MyTime, now’s the perfect time. Come along for a cuppa, connection and a supportive village that’s here for you – we’d love to welcome you! Find out more about MyTime or the location of your closest group at www.downsyndrome.org.au/vic/services-and-supports/mytime/ ID: A photo of Grace smiling at the camera. She has wavy brown shoulder-length hair and is wearing a top with swirls on it and a sporty jacket.

0 CommentsComment on Facebook

Carer Gateway – Holstep Health are proudly supporting StepUP! Melbourne, and we’re excited to share the fantastic services and support they provide, especially for carers.

Caring for someone can be incredibly rewarding, but it’s not always easy. That’s why @Carer Gateway is there to help with:💜 tailored support packages, including assistance with transport, equipment or education costs💜 counselling or coaching to help you talk things through💜 peer support groups to connect with other carers💜 emergency or planned respite care to give you a break.Call Carer Gateway on 1800 422 737 (Monday to Friday, 8am to 5pm) or visit carergateway.gov.au to find out more.Be sure to stop by the purple Carer Gateway stall at StepUP! to meet their friendly team!If you would like to read about what to expect at StepUP! or register to be part of the fun, visit the link in our bio or ID: There is a close-up photo of two adults, a man and a woman. They are smiling and are outside with a brick wall behind them. There is also some text that is featured in the body of this post, and logos of the organisations mentioned. ... See MoreSee Less

7 days ago
Carer Gateway – Holstep Health are proudly supporting StepUP! Melbourne, and we’re excited to share the fantastic services and support they provide, especially for carers. Caring for someone can be incredibly rewarding, but it’s not always easy. That’s why @Carer Gateway is there to help with: 💜 tailored support packages, including assistance with transport, equipment or education costs 💜 counselling or coaching to help you talk things through 💜 peer support groups to connect with other carers 💜 emergency or planned respite care to give you a break. Call Carer Gateway on 1800 422 737 (Monday to Friday, 8am to 5pm) or visit carergateway.gov.au to find out more. Be sure to stop by the purple Carer Gateway stall at StepUP! to meet their friendly team! If you would like to read about what to expect at StepUP! or register to be part of the fun, visit the link in our bio or https://stepupvic.com.au ID: There is a close-up photo of two adults, a man and a woman. They are smiling and are outside with a brick wall behind them. There is also some text that is featured in the body of this post, and logos of the organisations mentioned.

0 CommentsComment on Facebook

We would love for you to join us at one of our workshops or chats in September.

🔸 Coffee and Chat 15+, Thursday 4 September🔸 Toilet tips, Tuesday 9 September🔸 Volunteering at DSV information session, Tuesday 23 September🔸 Coffee and Chat 15+, Thursday September 25 SeptemberFor event details and registration, check out https://downsyndrome.org.au/vic/news-and-events/…ID: A photo of an man with Down syndrome. He is wearing a blue shirt with short sleeves. He has a big smile and has one of his hands cupping his chin, making him look both happy and thoughtful. There are words that read 'what's on this month at DSV'. ... See MoreSee Less

1 week ago
We would love for you to join us at one of our workshops or chats in September. 🔸 Coffee and Chat 15+, Thursday 4 September 🔸 Toilet tips, Tuesday 9 September 🔸 Volunteering at DSV information session, Tuesday 23 September 🔸 Coffee and Chat 15+, Thursday September 25 September For event details and registration, check out https://www.downsyndrome.org.au/vic/news-and-events/events/ ID: A photo of an man with Down syndrome. He is wearing a blue shirt with short sleeves. He has a big smile and has one of his hands cupping his chin, making him look both happy and thoughtful. There are words that read whats on this month at DSV.

0 CommentsComment on Facebook

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

Send an enquiry

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