Skip to content 1300 881 935 DSA
Down Syndrome VIC logo Down Syndrome VIC
You are viewing:
national dsa act nsw nt qld sa tas vic wa
Contact Us (current) Donate (current) Shop (current)
You are viewing:
national dsa act nsw nt qld sa tas vic wa
Login 1300 881 935 Voice Website
Down Syndrome Victoria thumbnail.
Down Syndrome Victoria Logo

(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

Banner section image

Applications are open to join DSV's Advisory Network

DSV is looking for 2 people with Down syndrome to join our Advisory Network. The Advisory Network helps DSV understand what is important to people with Down syndrome. You will help DSV make good decisions.

Find out more

Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

Make a donation
Become a member today

Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

Follow Us

Services and Supports

Our work and strategic plan

Annual Reports icon

Annual Reports
Financial Statements icon

Financial Statements
Policies and Procedures icon

Policies and Procedures
Strategic Plan 2024-2026 icon

Strategic Plan 2024-2026
Diversity & Inclusion Action Plan icon

Diversity & Inclusion Action Plan
Resource Hub icon

Resource Hub

News

More news from vic News from other states

Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

Man and young girl sitting in nature.

Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

A woman in a red dress holds a sign saying support

We help people with Down syndrome and families with support, information and resources.

Couple with a baby

We have support services for people with Down syndrome and families, at all stages of life.

Our Services

A young woman with a support team

Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

A man talks, next to a woman.

We also advocate for people with Down syndrome and their families.

A man holding thumbs up

This means we help to make sure that people with Down syndrome can be fully included in their community.

A computer screen

You can find out more about our services on our website.

Go to our Services and supports page.

A document with the word 'Policy'

You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

Thumbnail

You can read our latest news on our website.

Go to our News page.

Events

An event outdoors

We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

Tablets and phone screens with social media icons

You can follow our social media to see our news and stories.

Facebook

Twitter

Instagram

LinkedIn

YouTube

Pinterest

Contact Us

A woman talks on the phone

Telephone: 1300 658 873

Email: info@dsav.asn.au

Get Social

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

It's National Volunteer Week! At DSV, our volunteers are such a valued, essential part of our programs, events and community. Last financial year, DSV had 82 volunteers support us and our programs and we are lucky to have each one!

We’d like to introduce you to one of our wonderful Club21 volunteers, Sophie. Sophie volunteers with our Club21 program in Ballarat. When we asked her what she gets out of volunteering with us, Sophie said, "Volunteering with Club21 has given me the opportunity to build genuine connections with participants and fellow volunteers, deepen my understanding and empathy, and strengthen my skills. The participants' warmth and resilience always guarantee that I leave activities with a smile on my face and the warm and fuzzies inside! "I wholeheartedly encourage others to volunteer with DSV! Taking time to give back benefits the community and brings so much joy." You can read our whole interview with Sophie at https://downsyndrome.org.au/blog/2025/… If you have any questions about volunteering with DSV, we would love to hear from you. You can visit our Volunteers page at https://downsyndrome.org.au/vic/get-involved-2/… or email volunteer@dsav.asn.au.Or if you’re sold and ready to take the next step, we’d love you to submit a Volunteer Registration Form at https://downsyndromevictoria.snapforms.com.au/form… and our team will be in touch shortly. While we invite all applications, we’re actively recruiting volunteers in regional areas for Club21 and volunteers in our Metro, Greensborough, Frankston, Bendigo and our upcoming Hawthorn locations for FitSkills21. If that’s you, we would love to hear from you! A big thank you for everyone at DSV to all of our volunteers! We couldn't do what we do without you!ID: A photo of Sophie wearing a scarf and smiling. Part of her quote from the post is also included as text. ... See MoreSee Less

16 hours ago
Its National Volunteer Week! At DSV, our volunteers are such a valued, essential part of our programs, events and community. Last financial year, DSV had 82 volunteers support us and our programs and we are lucky to have each one! We’d like to introduce you to one of our wonderful Club21 volunteers, Sophie. Sophie volunteers with our Club21 program in Ballarat. When we asked her what she gets out of volunteering with us, Sophie said, Volunteering with Club21 has given me the opportunity to build genuine connections with participants and fellow volunteers, deepen my understanding and empathy, and strengthen my skills. The participants warmth and resilience always guarantee that I leave activities with a smile on my face and the warm and fuzzies inside! I wholeheartedly encourage others to volunteer with DSV! Taking time to give back benefits the community and brings so much joy. You can read our whole interview with Sophie at https://www.downsyndrome.org.au/blog/2025/05/14/volunteer-profile-sophie/ If you have any questions about volunteering with DSV, we would love to hear from you. You can visit our Volunteers page at https://www.downsyndrome.org.au/vic/get-involved-2/volunteer/ or email volunteer@dsav.asn.au. Or if you’re sold and ready to take the next step, we’d love you to submit a Volunteer Registration Form at https://downsyndromevictoria.snapforms.com.au/form/volunteer-registration-form and our team will be in touch shortly. While we invite all applications, we’re actively recruiting volunteers in regional areas for Club21 and volunteers in our Metro, Greensborough, Frankston, Bendigo and our upcoming Hawthorn locations for FitSkills21. If that’s you, we would love to hear from you! A big thank you for everyone at DSV to all of our volunteers! We couldnt do what we do without you! ID: A photo of Sophie wearing a scarf and smiling. Part of her quote from the post is also included as text.

2 CommentsComment on Facebook

We are still buzzing following the MRC Foundation Gala last Thursday night, which was a truly unforgettable experience for all attendees.

We knew we were fortunate to have been chosen as this year's MRC Gala charity partner, but this past week has confirmed just how special the opportunity was. In addition to the hugely important fundraising element of the evening, we've also had the benefit of forging new connections that will help strengthen our community, as well as the chance to share vital stories and messages about the importance of the work we do with a community outside of our own.MRC Foundation raised over $325,000, and DSV is so lucky to receive $250,000 of that. This generous donation will vitally help us make up a gap in our funding, enabling us to deliver support, education and advocacy for and with our amazing community.We are incredibly grateful to everyone who made the night a success, including the @MelbourneRacingClub Foundation, the generous businesses and individuals who donated incredible gala auction and raffle items, our dedicated team of MRC and DSV volunteers, the 600+ attendees (and those from afar) who purchased raffle tickets, bid on silent auction items or made a pledge to raise critical funds for our organisation, and our fabulous DSV community who celebrated with us on the night.The impact of this event will be far reaching, and we are so grateful. ✨ID: A collection of photos from the gala, including group photos of DSV staff and community who attended, Matt giving a speech on the stage with his arms outstretched, the audience and the decorated ballroom, and Dan, Matt, Kath and Felicia seated on the stage. Everyone is wearing snazzy dresses and suits, and there are lots of big smiles. ... See MoreSee Less

4 days ago
We are still buzzing following the MRC Foundation Gala last Thursday night, which was a truly unforgettable experience for all attendees. We knew we were fortunate to have been chosen as this years MRC Gala charity partner, but this past week has confirmed just how special the opportunity was. In addition to the hugely important fundraising element of the evening, weve also had the benefit of forging new connections that will help strengthen our community, as well as the chance to share vital stories and messages about the importance of the work we do with a community outside of our own. MRC Foundation raised over $325,000, and DSV is so lucky to receive $250,000 of that. This generous donation will vitally help us make up a gap in our funding, enabling us to deliver support, education and advocacy for and with our amazing community. We are incredibly grateful to everyone who made the night a success, including the @MelbourneRacingClub Foundation, the generous businesses and individuals who donated incredible gala auction and raffle items, our dedicated team of MRC and DSV volunteers, the 600+ attendees (and those from afar) who purchased raffle tickets, bid on silent auction items or made a pledge to raise critical funds for our organisation, and our fabulous DSV community who celebrated with us on the night. The impact of this event will be far reaching, and we are so grateful. ✨ ID: A collection of photos from the gala, including group photos of DSV staff and community who attended, Matt giving a speech on the stage with his arms outstretched, the audience and the decorated ballroom, and Dan, Matt, Kath and Felicia seated on the stage. Everyone is wearing snazzy dresses and suits, and there are lots of big smiles.Image attachmentImage attachment+5Image attachment

9 CommentsComment on Facebook

Down Syndrome Australia, together with its state and territory partners, is running a national survey for families and carers of individuals with Down syndrome.

This survey is about the resources, advice and referrals we provide.Why take part?💙 Help us develop the right resources to meet your needs – health, employment, education and more.💙 Let us know if our information on how to access resources and where to go for support is clear enough.💙 Plus, you can enter the draw to win one of five $100 gift cards!Your input helps us offer the best possible information and support to you.We’d be very grateful if you could take 15 to 20 minutes to share your feedback. You can find the survey at Help us hit 200 responses! Please share the survey with other families and carers of people with Down syndrome in your network.If you have questions, contact Down Syndrome Australia on1300 344 954 or email them at info@downsyndrome.org.au.ID: Three people who look like family are standing together and smiling at the camera. They are different ages, from teen to older adult. The words reflect what is included in the post text. ... See MoreSee Less

5 days ago
Down Syndrome Australia, together with its state and territory partners, is running a national survey for families and carers of individuals with Down syndrome. This survey is about the resources, advice and referrals we provide. Why take part? 💙 Help us develop the right resources to meet your needs – health, employment, education and more. 💙 Let us know if our information on how to access resources and where to go for support is clear enough. 💙 Plus, you can enter the draw to win one of five $100 gift cards! Your input helps us offer the best possible information and support to you. We’d be very grateful if you could take 15 to 20 minutes to share your feedback. You can find the survey at https://tinyurl.com/yc7x93t2 Help us hit 200 responses! Please share the survey with other families and carers of people with Down syndrome in your network. If you have questions, contact Down Syndrome Australia on1300 344 954 or email them at info@downsyndrome.org.au. ID: Three people who look like family are standing together and smiling at the camera. They are different ages, from teen to older adult. The words reflect what is included in the post text.

0 CommentsComment on Facebook

Would you like the opportunity to connect with other parents and carers of people with Down syndrome who are over the age of 15? We have just the thing for you.

Join us online on Thursday 22 May at 8pm to connect with other parents, share information and experiences, and get the latest updates from DSV. The group is guided by DSV's Debby Fraumano.The types of topics we discuss:☕ options for after schooling☕ NDIS☕ employment☕ health and wellbeing☕ moving out of home☕ recreation ideas.To find out more and register, visit https://downsyndrome.org.au/blog/event/…Bring your cuppa and come chat with us!ID: a teapot and coffee cup on a wooden table, viewed from above. ... See MoreSee Less

6 days ago
Would you like the opportunity to connect with other parents and carers of people with Down syndrome who are over the age of 15? We have just the thing for you. Join us online on Thursday 22 May at 8pm to connect with other parents, share information and experiences, and get the latest updates from DSV. The group is guided by DSVs Debby Fraumano. The types of topics we discuss: ☕ options for after schooling ☕ NDIS ☕ employment ☕ health and wellbeing ☕ moving out of home ☕ recreation ideas. To find out more and register, visit https://www.downsyndrome.org.au/blog/event/may-coffee-and-chat-15-years-2/ Bring your cuppa and come chat with us! ID: a teapot and coffee cup on a wooden table, viewed from above.

0 CommentsComment on Facebook

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

Send an enquiry

  • This field is for validation purposes and should be left unchanged.