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Down Syndrome Victoria Logo

(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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It's time to StepUP! for Down syndrome!

Let's get ready to StepUP! for Down syndrome. ο»ΏStepUP! for Down syndrome is held during Down Syndrome Awareness Month every October. It's a time for families, friends and our supporters to come together in celebration of people with Down syndrome.

Register now!

Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

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Our work and strategic plan

Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

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Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

A woman in a red dress holds a sign saying support

We help people with Down syndrome and families with support, information and resources.

Couple with a baby

We have support services for people with Down syndrome and families, at all stages of life.

Our Services

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Here are the services we offer:

β€’ groups and activities

β€’ information about Down syndrome

β€’ support for people with Down syndrome

β€’ support for parents and families

β€’ support for professionals and teachers

β€’ workshops and training.

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We also advocate for people with Down syndrome and their families.

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This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

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You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

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Twitter

Instagram

LinkedIn

YouTube

Pinterest

Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

Get Social

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Are you looking for a safe, supportive and FUN space for your teen to build friendships, boost independence and make lifelong memories? Club21 Teens is a social program designed especially for teens with Down syndrome! Our new calendar for August and September is packed with amazing events!

Our team creates enjoyable, confidence-building experiences where your teen can thrive – and have a blast doing it!To learn more about CLub21 and register your interest, complete the enquiry form here: https://downsyndromevictoria.snapforms.com.au/form…ID: A group of Club21 participants huddled in a big group, smiling at the camera. They are outside at night and you can see some of the city skyline behind them. ... See MoreSee Less

1 week ago
Are you looking for a safe, supportive and FUN space for your teen to build friendships, boost independence and make lifelong memories? Club21 Teens is a social program designed especially for teens with Down syndrome! Our new calendar for August and September is packed with amazing events!

Our team creates enjoyable, confidence-building experiences where your teen can thrive – and have a blast doing it!

To learn more about CLub21 and register your interest, complete the enquiry form here: https://downsyndromevictoria.snapforms.com.au/form/club21-enquiry-forms

ID: A group of Club21 participants huddled in a big group, smiling at the camera. They are outside at night and you can see some of the city skyline behind them.

There's lots going on in Geelong for our DSV community.

Freemasons Cosmopolitan Lodge No 96 raised funds for people with Down syndrome and their families in and around Geelong. These funds will be distributed through Down Syndrome Victoria to deliver essential supports and services where they are needed most, bringing additional connections and exciting opportunities to the area over the next two years.There is an upcoming in-person event about employment on Sunday 17 August, as well as a new steering committee and DSV programs available in Geelong and the surrounding communities.You can read about it on our website at https://downsyndrome.org.au/blog/2025/…ID: An outdoor shot from last year's StepUP! Geelong event. There is a large group of people by the water's edge. Some people are wearing costumes, including a tiger costume, and there are large palm trees and Ferris wheel in view. ... See MoreSee Less

1 week ago
Theres lots going on in Geelong for our DSV community.

Freemasons Cosmopolitan Lodge No 96 raised funds for people with Down syndrome and their families in and around Geelong. These funds will be distributed through Down Syndrome Victoria to deliver essential supports and services where they are needed most, bringing additional connections and exciting opportunities to the area over the next two years.

There is an upcoming in-person event about employment on Sunday 17 August, as well as a new steering committee and DSV programs available in Geelong and the surrounding communities.

You can read about it on our website at https://www.downsyndrome.org.au/blog/2025/07/24/happening-in-geelong/

ID: An outdoor shot from last years StepUP! Geelong event. There is a large group of people by the waters edge. Some people are wearing costumes, including a tiger costume, and there are large palm trees and Ferris wheel in view.

If you live in or around Geelong, we invite you to our upcoming information session about employment options and considerations for people with Down syndrome.

πŸ’› Sunday 17 AugustπŸ’› 1:30pmπŸ’› Armstrong Creek East Community Hub, 46-70 Central Boulevard, GeelongπŸ’› For adults with Down syndrome aged 16 years and over in the Geelong region, and their families and carersThis information session will be presented by DSV’s Employment Connections Manager Bree Mills.You will learn about:πŸ’™ Australian disability enterprises (ADEs)πŸ’™ customised employment servicesπŸ’™ disability employment services (DES)πŸ’™ DSV’s Employment Connections programπŸ’™ work experience and volunteeringπŸ’™ employment income impact on Disability Support Pension payments and how to remain eligible.We will share what each of these options are, eligibility and how to find them.Light refreshments will be provided.You can find out more and register at https://downsyndrome.org.au/blog/event/…ID: A photo of DSV's Kath working behind a monitor in what looks like a kitchen or cafe. ... See MoreSee Less

2 weeks ago
If you live in or around Geelong, we invite you to our upcoming information session about employment options and considerations for people with Down syndrome.

πŸ’› Sunday 17 August
πŸ’› 1:30pm
πŸ’› Armstrong Creek East Community Hub, 46-70 Central Boulevard, Geelong
πŸ’› For adults with Down syndrome aged 16 years and over in the Geelong region, and their families and carers

This information session will be presented by DSV’s Employment Connections Manager Bree Mills.

You will learn about:
πŸ’™ Australian disability enterprises (ADEs)
πŸ’™ customised employment services
πŸ’™ disability employment services (DES)
πŸ’™ DSV’s Employment Connections program
πŸ’™ work experience and volunteering
πŸ’™ employment income impact on Disability Support Pension payments and how to remain eligible.

We will share what each of these options are, eligibility and how to find them.

Light refreshments will be provided.

You can find out more and register at https://www.downsyndrome.org.au/blog/event/employment-geelong/

ID: A photo of DSVs Kath working behind a monitor in what looks like a kitchen or cafe.

Do you know anyone who has been thinking of volunteering with DSV? We have an online information session on Tuesday 12 August to find out what is involved.

Learn how you can become part of a supportive and inspiring community. Whether you’re a student, professional, retiree or simply someone with some spare time to give, this evening will give you insight into the rewarding opportunities available to volunteer with us. Sessions are run by our Volunteer Coordinator and are co-hosted by an adult with Down syndrome.You will learn about:πŸ’™ what Down syndrome isπŸ’™ the work of Down Syndrome VictoriaπŸ’™ how you can get involved as a volunteerπŸ’™ next steps.We really appreciate the commitment of time and energy of our volunteers. Volunteering is a way to connect with your local community, you can also learn new skills and grow your personal development.The session will be co-hosted by DSV's Emily Porter and Volunteer and HR Coordinator Johanne Zuleta.To find out more and register at https://downsyndrome.org.au/blog/event/…ID: DSV's Matt and FitSkills21 volunteer David, posing and smiling in a selfie. Matt is doing a shaka sign with his hand, and there is an outdoor pool in the background behind them. ... See MoreSee Less

2 weeks ago
Do you know anyone who has been thinking of volunteering with DSV? We have an online information session on Tuesday 12 August to find out what is involved.

Learn how you can become part of a supportive and inspiring community. Whether you’re a student, professional, retiree or simply someone with some spare time to give, this evening will give you insight into the rewarding opportunities available to volunteer with us. Sessions are run by our Volunteer Coordinator and are co-hosted by an adult with Down syndrome.

You will learn about:
πŸ’™ what Down syndrome is
πŸ’™ the work of Down Syndrome Victoria
πŸ’™ how you can get involved as a volunteer
πŸ’™ next steps.

We really appreciate the commitment of time and energy of our volunteers. Volunteering is a way to connect with your local community, you can also learn new skills and grow your personal development.

The session will be co-hosted by DSVs Emily Porter and Volunteer and HR Coordinator Johanne Zuleta.

To find out more and register at https://www.downsyndrome.org.au/blog/event/volunteering-session/

ID: DSVs Matt and FitSkills21 volunteer David, posing and smiling in a selfie. Matt is doing a shaka sign with his hand, and there is an outdoor pool in the background behind them.

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

Send an enquiry

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