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(03) 9486 9600

Down Syndrome Victoria is Victoria’s statewide peak organisation representing people with Down syndrome and their families.

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Applications are open to join DSV's Advisory Network

DSV is looking for 2 people with Down syndrome to join our Advisory Network. The Advisory Network helps DSV understand what is important to people with Down syndrome. You will help DSV make good decisions.

Find out more

Overview

Down Syndrome Victoria (DSV) is Victoria’s peak organisation representing people with Down syndrome and their families.

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Down Syndrome Victoria is a community based not-for-profit membership organisation established in 1978, made up of people with Down syndrome, their families, friends and professionals, all committed to achieving positive change.

We advocate with and for people with Down syndrome to have access to the same opportunities, supports and community activities as other Victorians. We work within a human rights framework, consistent with the United Nations Convention on the Rights of People with Disability.

We want to live in a society where people with Down syndrome are valued, and enjoy social and economic inclusion.

Together, we can and will create this inclusive community.

Please don’t hesitate to contact us on 9486 9600 or info@dsav.asn.au if you would like to speak with a team member or find out more about our organisation. Our office hours are 10am – 4.30pm Monday to Thursday.

We offer a range of services and supports to people with Down syndrome, their families and professionals across the lifespan.

  • Advice, support, workshops, information, social groups and community for people with Down syndrome
  • Personal and tailored support for parents and other family members during pregnancy and throughout the lifespan
  • Online community groups for families and people with Down syndrome
  • Training and information workshops covering a wide range of topics for people with Down syndrome, families, education and health professionals
  • An Education Program providing an extensive suite of resources, support and information for families and education professionals
  • A jam-packed calendar of events, including an annual Family Fun Day to connect and celebrate community
  • A regular newsletter, podcast and social media groups where you can explore the latest topics of interest and connect with like-minded people
  • Systemic advocacy that supports the full participation of people with Down syndrome in the economic and social life of the community

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Services and Supports

Our work and strategic plan

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Annual Reports
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Financial Statements
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Policies and Procedures
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Strategic Plan 2024-2026
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Diversity & Inclusion Action Plan
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News

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Down Syndrome Victoria

Down Syndrome Victoria logo

This page tells you about Down Syndrome Victoria and the work that we do.

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Down Syndrome Victoria is the organisation for people with Down syndrome and families in Victoria.

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We help people with Down syndrome and families with support, information and resources.

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We have support services for people with Down syndrome and families, at all stages of life.

Our Services

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Here are the services we offer:

• groups and activities

• information about Down syndrome

• support for people with Down syndrome

• support for parents and families

• support for professionals and teachers

• workshops and training.

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We also advocate for people with Down syndrome and their families.

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This means we help to make sure that people with Down syndrome can be fully included in their community.

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You can find out more about our services on our website.

Go to our Services and supports page.

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You can find our policies on our website. This means the way we work, and your rights as a customer.

Go to our Policies and Procedures.

News

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You can read our latest news on our website.

Go to our News page.

Events

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We have events like social clubs, outings, workshops and webinars.

You can read about our events on our Events page.

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You can follow our social media to see our news and stories.

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Contact Us

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Telephone: 1300 658 873

Email: info@dsav.asn.au

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The April edition of DNews is out now! There are so many ways to get involved at DSV, whether you're looking to connect, contribute or just try something new. There are some really exciting events coming up on the DSV calendar, and a few great opportunities happening out in our community too. Read all about what’s coming up and you might find something that inspires you to jump in.

Check your inbox for:🔹 our Advisory Network are recruiting new members🔹 upcoming dinner in Ballarat🔹 Sponsor spotlight: Oak Living🔹 Larapinta Challenge 2025: Charity Partner profile🔹 Colby's write up on Family Fun Day 2025 🔹 MRC Foundation Gala is two weeks away🔹 an interview with a FitSkills21 participant🔹 EPIC reunion coming up 🔹 and more!If it's not in your inbox, you can still read it at ID: Three teenagers with Down syndrome seated together, all smiling. One of the girls is giving the peace sign, and the other two have their arms around each other's shoulders. ... See MoreSee Less

5 days ago
The April edition of DNews is out now! There are so many ways to get involved at DSV, whether youre looking to connect, contribute or just try something new. There are some really exciting events coming up on the DSV calendar, and a few great opportunities happening out in our community too. Read all about what’s coming up and you might find something that inspires you to jump in. Check your inbox for: 🔹 our Advisory Network are recruiting new members 🔹 upcoming dinner in Ballarat 🔹 Sponsor spotlight: Oak Living 🔹 Larapinta Challenge 2025: Charity Partner profile 🔹 Colbys write up on Family Fun Day 2025 🔹 MRC Foundation Gala is two weeks away 🔹 an interview with a FitSkills21 participant 🔹 EPIC reunion coming up 🔹 and more! If its not in your inbox, you can still read it at https://mailchi.mp/dsav/dnewsapr2025 ID: Three teenagers with Down syndrome seated together, all smiling. One of the girls is giving the peace sign, and the other two have their arms around each others shoulders.

1 CommentsComment on Facebook

Our Charity Representative for the upcoming DSV Larapinta Challenge is DSV’s Debby Fraumano!

From 24 to 25 August, a group of intrepid hikers will be ticking off a major bucket list hike and raising vital funds for DSV at the same time. Starting and ending in Alice Springs, this is going to be an unforgettable adventure. Debby has shared with us why this trip is important to her.🥾🥾🥾🥾Hi, I am Debby Fraumano and I am the Adult Support Manager at Down Syndrome Victoria, where I’ve been working for almost seven years. During that time, I have the privilege of supporting adults with Down syndrome, their families and supports as they navigate key life transitions in areas like health, housing, employment and ageing.I’m taking on the DSV Larapinta Challenge to raise awareness and funds for a cause that means a great deal to me. There’s still a long way to go to ensure people with Down syndrome have equal access to opportunities in education, employment, housing and healthcare. That’s why the advocacy and support provided by DSV is so vital—it helps create pathways for people to thrive and live the life they choose.Larapinta has been on my bucket list for years, and I love embracing new and meaningful experiences. We only get to live one life—so let’s make it the best possible, not just for ourselves, but for others too.Being selected as the Charity Representative for this trek is a huge honour. It means I get to represent the incredible people and families I’ve worked alongside over the years and help raise funds that make a real difference—like $96 for phone support, $500 for a home or hospital visit, or $4,480 to support a child with Down syndrome in school for a year.This journey is about more than just covering kilometres—it’s about making every step count, connecting with others, and embracing the opportunity to explore a unique and beautiful part of Australia. I’m excited to meet new people, learn from a different landscape and culture, and be part of something truly meaningful.Come and join me and a crew of other enthusiastic hikers this August! You can find out more about it at https://inspiredadventures.com.au/event/…Lace up your boots – until the end of April you can lock in your Larapinta adventure with a registration fee of just $1 (usually $390)! Use the code DSVONE to claim your spot.ID: Debby stands on top of a mountain peak smiling with her arms outstretched with excitement and achievement. ... See MoreSee Less

6 days ago
Our Charity Representative for the upcoming DSV Larapinta Challenge is DSV’s Debby Fraumano! From 24 to 25 August, a group of intrepid hikers will be ticking off a major bucket list hike and raising vital funds for DSV at the same time. Starting and ending in Alice Springs, this is going to be an unforgettable adventure. Debby has shared with us why this trip is important to her. 🥾🥾🥾🥾 Hi, I am Debby Fraumano and I am the Adult Support Manager at Down Syndrome Victoria, where I’ve been working for almost seven years. During that time, I have the privilege of supporting adults with Down syndrome, their families and supports as they navigate key life transitions in areas like health, housing, employment and ageing. I’m taking on the DSV Larapinta Challenge to raise awareness and funds for a cause that means a great deal to me. There’s still a long way to go to ensure people with Down syndrome have equal access to opportunities in education, employment, housing and healthcare. That’s why the advocacy and support provided by DSV is so vital—it helps create pathways for people to thrive and live the life they choose. Larapinta has been on my bucket list for years, and I love embracing new and meaningful experiences. We only get to live one life—so let’s make it the best possible, not just for ourselves, but for others too. Being selected as the Charity Representative for this trek is a huge honour. It means I get to represent the incredible people and families I’ve worked alongside over the years and help raise funds that make a real difference—like $96 for phone support, $500 for a home or hospital visit, or $4,480 to support a child with Down syndrome in school for a year. This journey is about more than just covering kilometres—it’s about making every step count, connecting with others, and embracing the opportunity to explore a unique and beautiful part of Australia. I’m excited to meet new people, learn from a different landscape and culture, and be part of something truly meaningful. Come and join me and a crew of other enthusiastic hikers this August! You can find out more about it at https://inspiredadventures.com.au/event/dsv-larapinta-2025/ Lace up your boots – until the end of April you can lock in your Larapinta adventure with a registration fee of just $1 (usually $390)! Use the code DSVONE to claim your spot. ID: Debby stands on top of a mountain peak smiling with her arms outstretched with excitement and achievement.

1 CommentsComment on Facebook

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6 days ago

0 CommentsComment on Facebook

A reminder that if you live in or near Ballarat, we would love to connect with you! Join us on Friday 2 May for a relaxed evening of conversation and community!

Enjoy a casual dinner while learning more about DSV services and supports available in your area.This event will feature a Q&A session with Wendy McNabb (a DSV Board Member), Juliana Addison (Member for Wendouree) and representatives from the Down Syndrome Advisory Network.🔹 Friday 2 May at 6:30pm🔹 Djila-tjarriu Community Hub, 18 Donegal Drive, Alfredton🔹 Dinner and non-alcoholic drinks will be provided🔹 Parking is available at the venueIt will be a great chance to connect with others and get any questions you might have about DSV answered. We'd love to see you there.To find out more and book your spot, visit https://downsyndrome.org.au/blog/event/…ID: A group of young adults hanging around together, smiling. They are seated on outdoor lounges and are rugged up with coats and beanies. ... See MoreSee Less

7 days ago
A reminder that if you live in or near Ballarat, we would love to connect with you! Join us on Friday 2 May for a relaxed evening of conversation and community! Enjoy a casual dinner while learning more about DSV services and supports available in your area. This event will feature a Q&A session with Wendy McNabb (a DSV Board Member), Juliana Addison (Member for Wendouree) and representatives from the Down Syndrome Advisory Network. 🔹 Friday 2 May at 6:30pm 🔹 Djila-tjarriu Community Hub, 18 Donegal Drive, Alfredton 🔹 Dinner and non-alcoholic drinks will be provided 🔹 Parking is available at the venue It will be a great chance to connect with others and get any questions you might have about DSV answered. Wed love to see you there. To find out more and book your spot, visit https://www.downsyndrome.org.au/blog/event/ballarat-dinner/ ID: A group of young adults hanging around together, smiling. They are seated on outdoor lounges and are rugged up with coats and beanies.

1 CommentsComment on Facebook

Get In Touch

Get in Touch

Street address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Postal address: 552 Victoria Street, Wurundjeri Country, North Melbourne 3051

Phone: 03 9486 9600

Toll free: 1300 658 873

Email: info@dsav.asn.au

Office Hours: 10:00am - 4:30pm Monday to Thursday

Feedback and Complaints

View our feedback and complaints form, or send us an email: info@dsav.asn.au

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